People living and growing older with a long-term physical disability are more likely to struggle with secondary conditions and access to health care and rehabilitation care.
We hope to learn more about secondary conditions:
We hope to learn more about accessing health care and rehabilitation care:
In 2009, we began following about 2,000 adults aging with multiple sclerosis (MS), muscular dystrophy (MD), post-polio syndrome (PPS) and spinal cord injury (SCI) living in the US. Over the last 5 years, the people in our survey have completed 2 to 4 surveys total.
Over the next 5 years, we plan to collect about 3 more surveys.
Our survey newsletters highlight some of our findings:
Also, summaries of our findings are updated on our blog as we publish or present new results.
We are not enrolling new participants at this time. Please check back for updates!
Mark Jensen, PhD is a rehabilitation psychologist who has more than 20 years of experience working with people living and aging with MS, MD, SCI, and other neurological conditions and injuries. Dr. Jensen is also known world-wide for his work in treating chronic pain with hypnosis.