<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Bowers, A</style></author><author><style face="normal" font="default" size="100%">Crabb, C.</style></author><author><style face="normal" font="default" size="100%">Owen, R.</style></author><author><style face="normal" font="default" size="100%">Heller, Tamar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Experiences of Medicaid Enrollees with Disabilities in the Transition to Managed Care: Qualitative Analysis of Consumer Survey Responses</style></title><secondary-title><style face="normal" font="default" size="100%">American Public Health Association Annual Meeting and Expo</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Elzea, Jamie L</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author><author><style face="normal" font="default" size="100%">Gibbons, Laura E</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Efficacy of A Telephone-Delivered Self-Management Intervention For Persons With Multiple Sclerosis: a Randomized Controlled Trial With a One-Year Follow-Up.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2015 Nov</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">96</style></volume><pages><style face="normal" font="default" size="100%">1945-1958</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: To evaluate the efficacy of a telephone-delivered self-management intervention for fatigue, pain, and depression in adults with multiple sclerosis (MS). DESIGN: Single-center, randomized (1:1), single blind (outcome assessors) parallel-group trial with a primary end-point of post-treatment (9-11 weeks post-randomization) and long-term follow-ups at 6- and 12-months. SETTING: Telephone-delivered across the United States. PARTICIPANTS: Adults with MS (N=163) with fatigue, chronic pain, and/or moderate depressive symptoms (age range 25-76 years). INTERVENTIONS: Eight-week individual telephone-delivered self-management intervention (T-SM: n=75) versus an eight-week individual telephone-delivered MS education intervention (T-ED: n=88). MAIN OUTCOME MEASURES: The primary outcome was the proportion who achieved a &amp;gt; 50% decrease in one or more symptom - fatigue impact, pain interference, and/or depression severity. Secondary outcomes included continuous measures of pain, fatigue impact, depression, self-efficacy, activation, health-related quality of life, resilience, and affect. RESULTS: For our primary outcome, 58% of those in the T-SM and 46% of those in the T-Ed had a &amp;gt; 50% reduction in one or more symptom; this difference was not statistically significant (OR: 1.50, 95% CI: 0.77 to 2.93, p = 0.238). Participants in both groups significantly improved from baseline to post-treatment in primary and secondary outcome measures (p &amp;lt; 0.05). T-SM participants reported significantly higher treatment satisfaction and therapeutic alliance and greater improvements in activation, positive affect, and social roles. Improvements were generally maintained at 6- and 12-months. CONCLUSIONS: Both interventions resulted in short- and long-term, clinically meaningful benefits. The study demonstrated that the telephone is an effective method for engaging participants in and extending the reach of care for individuals with MS.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">11</style></issue><section><style face="normal" font="default" size="100%">1945</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>13</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, I R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Expanding the Evidence Base for Community-Based Health Promotion in People with Disabilities: A Field Report</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><pub-location><style face="normal" font="default" size="100%">Oral Presentation at NARRTC's Annual Conference, Alexandria, Virginia</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Kratz, Anna L</style></author><author><style face="normal" font="default" size="100%">Chadd, Edmund</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Kehn, Matthew</style></author><author><style face="normal" font="default" size="100%">Kroll, Thilo</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">An examination of the psychometric properties of the community integration questionnaire (CIQ) in spinal cord injury.</style></title><secondary-title><style face="normal" font="default" size="100%">J Spinal Cord Med</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Jan 3</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">Epub Ahead of Print</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Objective To examine the psychometric properties of the Community Integration Questionnaire (CIQ) in large samples of individuals with spinal cord injury (SCI). Design Longitudinal 12-month survey study. Setting Nation-wide, community dwelling. Participants Adults with SCI: 627 at Time 1, 494 at Time 2. Interventions Not applicable. Outcome measures The CIQ is a 15-item measure developed to measure three domains of community integration in individuals with traumatic brain injury: home integration, social integration, and productive activity. SCI consumer input suggested the need for two additional items assessing socializing at home and internet/email activity. Results Exploratory factor analyses at Time 1 indicated three factors. Time 2 confirmatory factor analysis did not show a good fit of the 3-factor model. CIQ scores were normally distributed and only the Productive subscale demonstrated problems with high (25%) ceiling effects. Internal reliability was acceptable for the Total and Home scales, but low for the Social and Productive activity scales. Validity of the CIQ is suggested by significant differences by sex, age, and wheelchair use. Conclusions The factor structure of the CIQ was not stable over time. The CIQ may be most useful for assessing home integration, as this is the subscale with the most scale stability and internal reliability. The CIQ may be improved for use in SCI by including items that reflect higher levels of productive functioning, integration across the life span, and home- and internet-based social functioning.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Goetz, Mark C</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Effects of pain and fatigue on physical functioning and depression in persons with muscular dystrophy.</style></title><secondary-title><style face="normal" font="default" size="100%">Disability and Health Journal</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Disabil Health J</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2012 Oct</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">5</style></volume><pages><style face="normal" font="default" size="100%">277-83</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Pain and fatigue are common symptoms experienced by persons with muscular dystrophy (MD). However, it is unclear from previous studies whether pain and fatigue have independent effects on physical functioning and depression, and whether age moderates the relationship of pain and fatigue with physical functioning and depression. OBJECTIVE: This cross-sectional study aimed to describe the relationship of pain and fatigue to physical functioning and depression in persons 20-89 years old with MD. METHOD: A convenience sample of 332 individuals with MD completed a questionnaire that included measures of physical functioning (PROMIS item bank items), depression (PHQ-9), pain intensity (0-10 NRS), and fatigue (0-10 NRS). RESULTS: Pain and fatigue were each independently associated with physical functioning and depression. Depressive symptoms were most severe among middle-aged participants (45-64 years old) relative to older and younger participants. Physical functioning had a negative relationship with chronological age. CONCLUSIONS: Symptoms of pain and fatigue are significantly and independently related to physical functioning and depression in persons with MD. Research is needed to determine if treatments that target both pain and fatigue in patients with MD have more beneficial effects than treatments that target only one of these symptoms.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">4</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/23021739?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Gibbons, Laura E</style></author><author><style face="normal" font="default" size="100%">Kraft, George H</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">The effects of telephone-based physical activity counselling on fatigue, pain, symptoms and quality of life in people with multiple sclerosis and major depression</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://www.posters2view.com/ectrims2012/view.php?nu=486</style></url></web-urls></urls><publisher><style face="normal" font="default" size="100%">European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS)</style></publisher><pub-location><style face="normal" font="default" size="100%">Lyon, France</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Chen, Keyu</style></author><author><style face="normal" font="default" size="100%">Harniss, Mark</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Embedded assessment in the home and community life of individuals aging with disabilities</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><publisher><style face="normal" font="default" size="100%">Workshop on Evaluating Off-the-Shelf Technologies for Personal Health Monitoring at the 14th International Conference on Ubiquitous Computing</style></publisher><pub-location><style face="normal" font="default" size="100%">Pittsburgh, PA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Goetz, Mark C</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Evidence for “accelerated aging” in older adults with disability?</style></title><secondary-title><style face="normal" font="default" size="100%">Journal of the American Geriatrics Society</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://onlinelibrary.wiley.com/doi/10.1111/j.1532-5415.2012.04000.x/pdf</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">60</style></volume><pages><style face="normal" font="default" size="100%">s239</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Improvements in medical care have led to longer life-spans for people with disabilities acquired early in life. However, there is some evidence that these improvements in longevity are offset by increased rates of medical conditions, due to a more rapid decline of organ system functioning in persons with disability. This phenomenon has been called &amp;ldquo;accelerated aging.&amp;rdquo; However, the existence of this phenomenon has not been adequately established in large samples with adequate age-matched controls. METHODS: The present study assessed self-reported rates of certain medical conditions in a large national sample of people with either spinal cord injury (n=540), post-polio syndrome (446), muscular dystrophy (382) or multiple sclerosis (640), and compared them to normative data taken from the National Health Interview Survey (NHIS) of more than 21,000 adults. Health conditions assessed included hypertension, coronary artery disease, cancer, diabetes, pain conditions, and vision trouble. Comparisons were conducted in four age bands: 18-44, 45-65, 65-75, 75+. Chi-square and independent samples t-tests were used for all analyses. RESULTS:Participants in the experimental sample were primarily Caucasian (92%) and female (63.3%), with an average age of 54.5 years. Results suggested that, across age bands, individuals with disabilities reported greater rates of hypertension, arthritis, joint pain and difficulties with vision (all p values &amp;lt; 0.05). However, in more advanced age bands (65-75 and 75+), adults with disabilities also reported greater frequency of organ system diseases (diabetes, coronary artery disease, and cancer) than were present in age matched national norms (all p values &amp;lt; 0.01). CONCLUSIONS: These results lend support to the idea of &amp;ldquo;accelerated aging&amp;rdquo; of organ systems in persons growing older with longstanding physical disabilities. Health care providers should be aware of the special medical needs associated with organ system decline in these individuals.&lt;/p&gt;
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