<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Growing Older With a Physical Disability: A Special Application of the Successful Aging Paradigm</style></title><secondary-title><style face="normal" font="default" size="100%">J Gerontology Series B</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2017</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">https://www.ncbi.nlm.nih.gov/pubmed/27702838 </style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">72</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;h4&gt;
	OBJECTIVES:&lt;/h4&gt;
&lt;p&gt;&lt;abstracttext label=&quot;OBJECTIVES&quot; nlmcategory=&quot;OBJECTIVE&quot;&gt;In the United States, the average age of people living with early-acquired physical disabilities is increasing. This cohort is said to be aging with disability and represents a unique population among older adults. Given recent policy efforts designed to merge aging and disability services, it is critical that models of &amp;quot;successful aging&amp;quot; include and are relevant to this population. However, many current definitions of successful aging emphasize avoidance of disability and high levels of physical function as necessary to well-being.&lt;/abstracttext&gt;&lt;/p&gt;
&lt;h4&gt;
	METHOD:&lt;/h4&gt;
&lt;p&gt;&lt;abstracttext label=&quot;METHOD&quot; nlmcategory=&quot;METHODS&quot;&gt;In 9 focus groups, we examined perspectives of &amp;quot;successful aging&amp;quot; in 49 middle-aged and older individuals living with spinal cord injury, multiple sclerosis, muscular dystrophy, or postpolio syndrome. Transcripts were analyzed using a structured qualitative coding approach and Dedoose indexing software.&lt;/abstracttext&gt;&lt;/p&gt;
&lt;h4&gt;
	RESULTS:&lt;/h4&gt;
&lt;p&gt;&lt;abstracttext label=&quot;RESULTS&quot; nlmcategory=&quot;RESULTS&quot;&gt;Participants ranged in age from 45 to 80 years (M = 62) and had lived with their disability diagnosis for an average of 21 years. Analysis revealed 4 primary themes of successful aging: resilience/adaptation, autonomy, social connectedness, and physical health (including access to general and specialty healthcare).&lt;/abstracttext&gt;&lt;/p&gt;
&lt;h4&gt;
	DISCUSSION:&lt;/h4&gt;
&lt;p&gt;&lt;abstracttext label=&quot;DISCUSSION&quot; nlmcategory=&quot;CONCLUSIONS&quot;&gt;Results highlight the need for a nuanced application of the &amp;quot;successful aging&amp;quot; paradigm in this population.&lt;/abstracttext&gt;&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue><section><style face="normal" font="default" size="100%">290</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Successful aging with long-term disability</style></title><secondary-title><style face="normal" font="default" size="100%">Annual Meeting of the Gerontological Society of North America</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Thomas E. McNalley</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Katherine G. Schomer</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Review of Secondary Health Conditions in Postpolio Syndrome: Prevalence and Effects of Aging.</style></title><secondary-title><style face="normal" font="default" size="100%">Am J Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Aug 13</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">94</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: This study sought to better understand the prevalence and the severity of secondary health conditions in individuals with postpolio syndrome (PPS) as well as the association between these conditions and aging. DESIGN: A scoping literature review was conducted searching electronic databases for studies published from 1986 to 2011. The scoping review provided information regarding the prevalence and associations of secondary health conditions in PPS with age or other duration-related variables. RESULTS: The findings indicate that (1) individuals with PPS experience a number of serious secondary health conditions; (2) the most common conditions or symptoms are fatigue, pain, respiratory and sleep complaints, and increased risk for falls; (3) reports of the associations between the frequency or the severity of conditions and age-related factors are variable, perhaps because of methodological inconsistencies between studies; and (4) there is a marked lack of longitudinal research examining the natural course of health conditions in people aging with PPS. CONCLUSIONS: Longitudinal research is needed to understand the course of health conditions and the impact of multiple secondary conditions in people aging with PPS. Efforts are also needed to develop and test the efficacy of interventions to prevent these secondary health conditions or reduce their negative impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue><section><style face="normal" font="default" size="100%">139</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Verall, AM</style></author><author><style face="normal" font="default" size="100%">Johnson, KL</style></author><author><style face="normal" font="default" size="100%">Yorkston, K M</style></author><author><style face="normal" font="default" size="100%">Matter, B</style></author><author><style face="normal" font="default" size="100%">Smith, A</style></author><author><style face="normal" font="default" size="100%">Nelson, I</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Translating Research Findings into Useful Tools for Patients and Providers</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><pub-location><style face="normal" font="default" size="100%">Poster presented at Lehmann's Day, Seattle, Washington</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Communicative participation restrictions in multiple sclerosis: Associated variables and correlation with social functioning.</style></title><secondary-title><style face="normal" font="default" size="100%">J Commun Disord</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 May 26</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">Epub Ahead of Print</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Individuals with multiple sclerosis (MS) are at risk for communication problems that may restrict their ability to take participation in important life roles such as maintenance of relationships, work, or household management. The aim of this project is to examine selected demographic and symptom-related variables that may contribute to participation restrictions. This examination is intended to aid clinicians in predicting who might be at risk for such restrictions and what variables may be targeted in interventions. Community-dwelling adults with MS (n=216) completed a survey either online or using paper forms. The survey included the 46-item version of the Communicative Participation Item Bank, demographics (age, sex, living situation, employment status, education, and time since onset of diagnosis of MS), and self-reported symptom-related variables (physical activity, emotional problems, fatigue, pain, speech severity, and cognitive/communication skills). In order to identify predictors of restrictions in communicative participation, these variables were entered into a backwards stepwise multiple linear regression analysis. Five variables (cognitive/communication skills, speech severity, speech usage, physical activity, and education) were statistically significant predictors of communication participation. In order to examine the relationship of communicative participation and social role variables, bivariate Spearman correlations were conducted. Results suggest only a fair to moderate relationship between communicative participation and measures of social roles. Communicative participation is a complex construct associated with a number of self-reported variables. Clinicians should be alert to risk factors for reduced communicative participation including reduced cognitive and speech skills, lower levels of speech usage, limitations in physical activities and higher levels of education. Learning outcomes: The reader will be able to: (a) describe the factors that may restrict participation in individuals with multiple sclerosis; (b) list measures of social functioning that may be pertinent in adults with multiple sclerosis; (c) discuss factors that can be used to predict communicative participation in multiple sclerosis.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Yorkston, Kathryn</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Integrating Development of Self-Efficacy into Treatment Decisions</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year></dates><pub-location><style face="normal" font="default" size="100%">Oral presentation at the American Speech-Language-Hearing Association’s Convention, Orlando, Florida</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Summary&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Definitions:&amp;nbsp; &lt;/u&gt;&lt;/p&gt;
&lt;p&gt;People living with chronic communication problems such as aphasia learn to manage their own conditions.&amp;nbsp; They decide whether or not to adhere to exercise programs, to participate in social activities and roles, and to use the health-care resources available to them. Self-management is based on the idea that those with a chronic condition should take an active, central role in managing their disease, secondary conditions, and health care (Rae-Grant et al, 2011). Development of self-efficacy is an important component of self-management. &lt;u&gt;Self-efficacy&lt;/u&gt; is the belief in one&amp;rsquo;s ability to produce the effects or outcomes one wants (Bandura, 1977).&amp;nbsp; Because self-efficacy can be taught, speech-language pathologists should incorporate principles of self-efficacy into treatment plans.&amp;nbsp; Bandura suggests self-efficacy can be improved by focusing on four factors that are potentially amendable to intervention: performance accomplishment, vicarious experience, verbal persuasion and maintenance of an optimal physiological state.&amp;nbsp;&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Background&lt;/u&gt; &lt;u&gt;of Qualitative &amp;amp; Quantitative Research&lt;/u&gt;&lt;/p&gt;
&lt;p&gt;Self-efficacy has been studied in people with various communication disorders including, voice disorders, stuttering, and hearing loss.&amp;nbsp; Recently, Runne (2012) conducted a series of semi-structured interviews with people in the chronic phase of stroke.&amp;nbsp; The five participants experienced either aphasia, dysarthria or both.&amp;nbsp; Questions related to their level of confidence regarding communication and the development of confidence over time.&amp;nbsp; Thematic analysis suggests that progress requires hard work, develops over a long period of time, and involves &amp;ldquo;working with what you have.&amp;rdquo;&amp;nbsp; Participants indicated that their family member&amp;rsquo;s role should be one of encouragement and praise.&amp;nbsp; For healthcare providers, the suggestions included &amp;ldquo;treat me like an individual and take time to get to know me.&amp;rdquo;&amp;nbsp;&lt;/p&gt;
&lt;p&gt;In a series of focus groups, we asked people aging with chronic physical disability to help us define the meaning of &amp;ldquo;aging well with disability.&amp;rdquo;&amp;nbsp; Many participants alluded to issues related to self-efficacy.&amp;nbsp; One participant told us, &amp;ldquo;successful aging with disability is recreating yourself.&amp;rdquo; Another indicated that successful aging was &amp;ldquo;to pull yourself up by your own bootstraps and do the things you need to do . . and want to do.&amp;rdquo;&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Treatment Decisions:&lt;/u&gt;&amp;nbsp; In planning and implementing treatment, clinicians and clients should share in the decisions.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Participation Focused Intervention&lt;/u&gt;:&amp;nbsp; Because it is important that intervention be individualized, targeted to real-world communication situations and focused on development of self-efficacy, we use the acronym PACE to describe a four step procedure for developing communication strategies (Yorkston et al, 2006):&lt;/p&gt;
&lt;ul&gt;
	&lt;li&gt;
		Priorities: Given limited energy and resources, it is important for those with communication problems to set priorities, to define what is important.&lt;/li&gt;
	&lt;li&gt;
		Awareness: After setting priorities, people with communication problems need to become aware of potential barriers to participation and the resources available to get around those barriers.&lt;/li&gt;
	&lt;li&gt;
		Constructing the Strategies: &amp;nbsp;Many of the people describe a process where they begin to do things in a different way.&amp;nbsp; Changing how things get done involves constructing and employing a personal set of strategies.&amp;nbsp; At first this is done with the clinician and later, people with communication disorders can set priorities and construct potential strategies independently.&lt;/li&gt;
	&lt;li&gt;
		Evaluation: An important last step in the development of strategies is to evaluate them by asking the question - does the strategy work for me? Evaluation involves weighing cost and benefits of the strategies and modifying them as needed.&lt;/li&gt;
&lt;/ul&gt;
&lt;p&gt;&lt;u&gt;Outcome Measures&lt;/u&gt;:&amp;nbsp; Because current healthcare trends demand documentation that healthcare services are regarded as valuable and bring about meaningful change from client perspectives, self-reported outcome measures are becoming increasingly important.&amp;nbsp; Self-reported measures of communicative participation are available (Baylor et al, 2013).&amp;nbsp; This item bank was developed using modern psychometric methods and validated with community-dwelling adults with various communication conditions.&amp;nbsp; A ten item short form is available.&amp;nbsp; A measure of self-efficacy for disease management has also recently been developed using rigorous psychometric methods.&amp;nbsp; Called the University of Washington Self-Efficacy Scale, the full item bank contains 17 items with five response options ranging from &amp;lsquo;not at all (confident)&amp;rsquo; to &amp;lsquo;completely (confident)&amp;rsquo;. Examples of items include: Can you keep your [condition] from being the center of your life? and Can you figure out effective solutions to [condition] related issues that come up? A 6-item short form is also available.&amp;nbsp; Taken together these scales allow clinicians to document treatment outcome both in terms of enhanced participation and self-efficacy.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Conclusions:&lt;/u&gt;&lt;/p&gt;
&lt;p&gt;Understanding the nature of self-efficacy is important for a number of reasons.&amp;nbsp; First, self-efficacy has been shown to be a predictor of physical, cognitive and social functioning.&amp;nbsp; It is also associated with improved health status, health behaviors and reduced medical services usage. It may also be a valuable predictor of healthy aging in individuals with degenerative conditions such as multiple sclerosis. In addition to its value as a predictor, self-efficacy is important because it is increasingly seen as a fruitful target for intervention.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;References&lt;/u&gt;&lt;/p&gt;
&lt;p&gt;Amtmann, D., Bamer, A. M., Cook, K. F., Askew, R. L., Noonan, V. K., &amp;amp; Brockway, J. A. (2012). University of Washington self-efficacy scale: a new self-efficacy scale for people with disabilities. &lt;em&gt;Arch Phys Med Rehabil, 93&lt;/em&gt;(10), 1757-1765.&lt;/p&gt;
&lt;p&gt;Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. &lt;em&gt;Psychological Review, 84&lt;/em&gt;, 191-215.&lt;/p&gt;
&lt;p&gt;Baylor, C., Yorkston, K., Eadie, T., Kim, J., Chung, H., &amp;amp; Amtmann, D. (2013). The Communicative Participation Item Bank (CPIB):&amp;nbsp; Item bank calibration and development of a disorder-generic short form. &lt;em&gt;Journal of Speech Language and Hearing Research, 56&lt;/em&gt;, 1190-1208.&lt;/p&gt;
&lt;p&gt;Rae-Grant, A. D., Turner, A., Sloan, A., Miller, D., Hunziker, J., &amp;amp; Haselkorn, J. (2011). Self-management in neurological disorders: Systematic review of the the literature and potential&amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Terrill, Alexandra L</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Modeling Secondary Health Conditions in Adults Aging With Physical Disability.</style></title><secondary-title><style face="normal" font="default" size="100%">J Aging Health</style></secondary-title><alt-title><style face="normal" font="default" size="100%">J Aging Health</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">04/2014</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">Apr;26</style></volume><pages><style face="normal" font="default" size="100%">335-59</style></pages><language><style face="normal" font="default" size="100%">ENG</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVES: To test a conceptual model of secondary health conditions, age, and function in persons aging with long-term physical disabilities. METHODS: Surveys were collected from 1,862 adults with spinal cord injury, neuromuscular disease, multiple sclerosis, or post-polio syndrome. Structural equation modeling was used to build a model describing relationships among physical and psychosocial secondary health conditions, pain, functional impairments, chronic medical conditions, and age. RESULTS: In total, 12 individual symptom or function domains (latent factors) were identified, grouped into 5 broader factors. Increasing age was associated with greater rates of physical and health problems and poorer function, and showed curvilinear relationships with pain and psychosocial difficulties. DISCUSSION: These data support a biopsychosocial model of secondary health conditions in adults aging with physical disability and suggest a five-factor approach for conceptualizing secondary conditions and their impact. Results also emphasize the importance of age in symptom severity and impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">3</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/24388897?dopt=Abstract</style></custom1><section><style face="normal" font="default" size="100%">335</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Bamer, Alyssa M</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Predictors of Self-Efficacy in Individuals Aging with a Disability</style></title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Resilience</style></keyword><keyword><style  face="normal" font="default" size="100%">Satisfaction with Social Role</style></keyword><keyword><style  face="normal" font="default" size="100%">Self-Efficacy</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2014</style></date></pub-dates></dates><pub-location><style face="normal" font="default" size="100%">Oral presentation at the International Society fo Quality of Life's (ISOQOL) 21st Annual Meeting, Berlin, Germany</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;h3&gt;
	AIMS&lt;/h3&gt;
&lt;p&gt;To examine the association of self-efficacy (SE) related to management of chronic disease with demographic and clinical indicators in individuals aging with physical disability. Self-efficacy is a critical mediator of human behavior and an important target for interventions to improve health outcomes. Changes in SE have been reported to be the best predictors of response to rehabilitation treatments. Understanding the role of SE in people&amp;rsquo;s ability to successfully self-manage and live effectively with physical limitations is important for designing treatments that can lead to better quality of life (QOL).&lt;/p&gt;
&lt;h3&gt;
	METHODS&lt;/h3&gt;
&lt;p&gt;The University of Washington Self-Efficacy Scale (UW-SES) that conceptualizes SE as perceived confidence in managing challenges related to living with a physical disability was used to measure SE. PROMIS&amp;copy; short forms (version 1) were used to measure pain interference, physical function, fatigue and social soles satisfaction. In addition to demographics we measured social support (the Multi-dimensional Scale of Perceived Social Support), depression (PHQ9), resilience (the Connor-Davidson Resiliency scale), interference with participation, and falls. A multivariate regression model was used to examine associations between SE and demographics, and symptoms or QOL indicators.&lt;/p&gt;
&lt;h3&gt;
	RESULTS&lt;/h3&gt;
&lt;p&gt;858 older people (aged 45+) with muscular dystrophy (MD: 18%), multiple sclerosis (MS: 32%), spinal cord injury (SCI: 26%), or post-polio syndrome (PPS: 24%) who participated in a study of aging with a disability responded to a mail survey. Of the 2,041 people invited 1,862 completed it (91% return rate). About a half of the participants were asked to respond to UWSES. The final multivariate model explained 68% of the variance in self-efficacy and included the following statistically significant independent variables: satisfaction with social roles, resilience, pain interference, interference with participation, social support, fatigue, and employment. Age, gender, marital status, education, income, physical function, depression, falls, and overall mobility were not found to be statistically significantly related to SE.&lt;/p&gt;
&lt;h3&gt;
	CONCLUSIONS&lt;/h3&gt;
&lt;p&gt;There is a strong link between SE, social variables and other clinical indicators including resilience, and symptoms of fatigue and pain. Interventions aimed at increasing SE in older adults living with physical disability should include strategies for improving social participation, increasing resiliency, and management of fatigue and pain. &amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Baylor, Carolyn R</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Truitt, A R</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Scoping Review of Common Secondary Conditions After Stroke and Their Associations with Age and Time Post Stroke</style></title><secondary-title><style face="normal" font="default" size="100%">Topics in Stroke Rehabilitation</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">09/2014</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">21</style></volume><pages><style face="normal" font="default" size="100%">371 - 382</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><issue><style face="normal" font="default" size="100%">5</style></issue><section><style face="normal" font="default" size="100%">371</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Miró, Jordi</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Social support, depression, and physical disability: Age and diagnostic group effects.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Apr</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">7</style></volume><pages><style face="normal" font="default" size="100%">164-72</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Social support is an important resource that may benefit individuals aging with physical disabilities, although its effects may vary depending on age, sex, and type of disability. OBJECTIVES: To (1) examine differences in social support - and how support might vary as a function of age and sex - in samples of individuals with multiple sclerosis (MS), spinal cord injury (SCI), and muscular dystrophy (MD) and (2) understand the extent that associations between different support domains and depression might be moderated by disability diagnosis, sex and age. METHODS: A convenience sample (N&amp;nbsp;=&amp;nbsp;1416) of individuals with MS, SCI, and MD completed surveys that included measures of perceived social support and depressive symptoms. RESULTS: No significant support differences were found between diagnostic groups. There was a gradual decrease in social support with chronological age, and women reported more support than men, particularly friend support. Levels of perceived friend support were negatively associated with depression, and the associations between social support and depression did not differ as a function of age, sex, or diagnosis. CONCLUSIONS: Social support is similarly associated with lower levels of depression for men and women, across disability diagnoses and all ages. Being a man and being older may be associated with lower levels of perceived support. Research is needed to determine if interventions that improve support will decrease depression and improve quality of life in persons with disabilities, particularly for men and individuals who are aging.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn</style></author><author><style face="normal" font="default" size="100%">Eadie, Tanya</style></author><author><style face="normal" font="default" size="100%">Kim, Jiseon</style></author><author><style face="normal" font="default" size="100%">Chung, Hyewon</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">The Communicative Participation Item Bank (CPIB): item bank calibration and development of a disorder-generic short form.</style></title><secondary-title><style face="normal" font="default" size="100%">J Speech Lang Hear Res</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Amyotrophic Lateral Sclerosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Calibration</style></keyword><keyword><style  face="normal" font="default" size="100%">Communication</style></keyword><keyword><style  face="normal" font="default" size="100%">Disability Evaluation</style></keyword><keyword><style  face="normal" font="default" size="100%">Dysarthria</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Head and Neck Neoplasms</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Multiple Sclerosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Parkinson Disease</style></keyword><keyword><style  face="normal" font="default" size="100%">Questionnaires</style></keyword><keyword><style  face="normal" font="default" size="100%">Reproducibility of Results</style></keyword><keyword><style  face="normal" font="default" size="100%">Self Report</style></keyword><keyword><style  face="normal" font="default" size="100%">Social Behavior</style></keyword><keyword><style  face="normal" font="default" size="100%">Voice Disorders</style></keyword><keyword><style  face="normal" font="default" size="100%">Young Adult</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Aug</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">56</style></volume><pages><style face="normal" font="default" size="100%">1190-208</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;PURPOSE: The purpose of this study was to calibrate the items for the Communicative Participation Item Bank (CPIB; Baylor, Yorkston, Eadie, Miller, &amp;amp; Amtmann, 2009; Yorkston et al., 2008) using item response theory (IRT). One overriding objective was to examine whether the IRT item parameters would be consistent across different diagnostic groups, thereby allowing creation of a disorder-generic instrument. The intended outcomes were the final item bank and a short form ready for clinical and research applications. METHOD: Self-report data were collected from 701 individuals representing 4 diagnoses: multiple sclerosis, Parkinson&amp;#39;s disease, amyotrophic lateral sclerosis, and head and neck cancer. Participants completed the CPIB and additional self-report questionnaires. CPIB data were analyzed using the IRT graded response model. RESULTS: The initial set of 94 candidate CPIB items were reduced to an item bank of 46 items demonstrating unidimensionality, local independence, good item fit, and good measurement precision. Differential item functioning analyses detected no meaningful differences across diagnostic groups. A 10-item, disorder-generic short form was generated. CONCLUSIONS: The CPIB provides speech-language pathologists with a unidimensional, self-report outcomes measurement instrument dedicated to the construct of communicative participation. This instrument may be useful to clinicians and researchers wanting to implement measures of communicative participation in their work.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">4</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, M P</style></author><author><style face="normal" font="default" size="100%">Truitt, A R</style></author><author><style face="normal" font="default" size="100%">Schomer, K G</style></author><author><style face="normal" font="default" size="100%">Yorkston, K M</style></author><author><style face="normal" font="default" size="100%">Baylor, C</style></author><author><style face="normal" font="default" size="100%">Molton, I R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review.</style></title><secondary-title><style face="normal" font="default" size="100%">Spinal Cord</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Spinal Cord</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Dec</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">51</style></volume><pages><style face="normal" font="default" size="100%">882-92</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;STUDY DESIGN: Scoping review. OBJECTIVES: To gain a better understanding of the prevalence, course and association with age of secondary health conditions in individuals with spinal cord injury (SCI). SETTING: Seattle, Washington, USA. METHODS: We performed searches of electronic databases for studies published from 1986-2011 that provided information regarding the prevalence, course or associations with age and duration of secondary health conditions in individuals with SCI. RESULTS: Ninety-two studies were included. The findings indicate that: (1) individuals with SCI experience a number of secondary health conditions, many of which occur at a higher rate in those with SCI than the normative population; (2) the most common conditions or symptoms are pain, bowel and bladder regulation problems, muscle spasms, fatigue, esophageal symptom and osteoporosis; (3) a number of conditions, including cardiovascular disease, diabetes, bone mineral density loss, fatigue and respiratory complications or infections, occur with higher frequency in older individuals or those with longer SCI duration, relative to younger individuals or those with shorter SCI duration; and (4) there is a marked lack of longitudinal research examining the natural course of health conditions in individuals aging with SCI. CONCLUSIONS: The findings support the conclusion that individuals with SCI show signs of &amp;#39;premature aging&amp;#39; in different organ systems. Longitudinal research is needed to understand when problems are most likely to emerge, and to develop and test the efficacy of interventions to prevent these health conditions and their negative impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">12</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/24126851?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Morris, Megan A</style></author><author><style face="normal" font="default" size="100%">Dudgeon, Brian J</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">A qualitative study of adult AAC users' experiences communicating with medical providers.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Rehabil Assist Technol</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Nov</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">8</style></volume><pages><style face="normal" font="default" size="100%">472-81</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;PURPOSE: To study the experiences of adults who use augmentative and alternative communication (AAC) systems and methods when interacting with medical providers, specifically primary care providers. METHOD: Individual face-to-face interviews were conducted with 12 participants, four of whom also participated in an online focus group. Diagnoses of the participants included cerebral palsy, undifferentiated developmental disability, head and neck cancer, amyotrophic lateral sclerosis and primary lateral sclerosis. Transcripts from the interviews and the focus group were analyzed to create a list of codes. From these codes themes that captured particular concepts discussed were identified. RESULTS: Participants described multiple frustrations in communicating with medical care providers. Themes that arose included: planning and preparing for the appointment, time barriers, inappropriate assumptions, relationship building and establishing rapport, medical decision making and implementing the plan. All but one participant reported bringing a caregiver with them to their appointments and this person, whether a family member, friend or paid aide, had a substantial role throughout the appointment. CONCLUSIONS: The participants&amp;#39; stories highlight important barriers they experience when communicating with medical providers. These barriers bring attention to the need for education for physicians, caregivers and patients with communication disabilities, along with increased research to improve patient-provider communication. IMPLICATIONS FOR REHABILITATION: Patients with communication disabilities face multiple barriers to communicating with medical care providers. Patients, caregivers, and medical care providers all play a role in effective and ineffective communication during appointments. Education for medical care providers, caregivers, and patients with communication disabilities, along with increased research is needed to improve patient-provider communication.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">6</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Thomas E. McNalley</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Katherine G. Schomer</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Scoping Review of Secondary Health Conditions fo People Aging with Post-Polio Syndrome</style></title><secondary-title><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year></dates><publisher><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></publisher><pub-location><style face="normal" font="default" size="100%">Boston, MA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;u&gt;Introduction.&lt;/u&gt;&amp;nbsp; Post-polio syndrome (PPS), occurring in approximately half of people who previous contracted polio, is characterized by increased weakness, pain and fatigue. Although this orphaned condition was nearly eradicated world-wide in the 20&lt;sup&gt;th&lt;/sup&gt; century, almost nothing is known about the trajectory of associated health conditions as people age or how these conditions can be distinguished from typical aging. &amp;nbsp;An environmental scan of the literature was conducted to establish a platform of shared knowledge to better understand the needs of this population. Specifically, this review examined the types, frequency, timing of onset, and severity of associated health conditions in persons aging with or into PPS.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Methods.&lt;/u&gt; PubMed, CINAHL, and PsycINFO were searched for data-based articles about adults with PPS using a list of 76 chronic conditions. Articles were included that explored prevalence / incidence, severity, frequency, duration, or life course of associated conditions.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Results&lt;/u&gt;.&amp;nbsp; Data were extracted from 57 articles. As expected, fatigue, pain, and muscle weakness were the most prevalent conditions.&amp;nbsp; In addition, a number of other conditions were reported: respiration problems, depression, sleep disturbance, injurious falls, bone or joint problems, cardiovascular health, diabetes, bladder function, and skin problems.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Conclusion&lt;/u&gt;.&amp;nbsp; A number of potentially treatable health conditions are common in people aging with PPS.&amp;nbsp; The lack of longitudinal studies limits our ability to draw conclusions about age and duration effects. Such information is needed to guide home and community based services or care coordination delivered through the network of programs sponsored by the aging agencies.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author><author><style face="normal" font="default" size="100%">Johnson, Kurt L</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Aging with longstanding physical disability: A focus group study</style></title><secondary-title><style face="normal" font="default" size="100%">Journal of the American Geriatrics Society</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://onlinelibrary.wiley.com/doi/10.1111/j.1532-5415.2012.04000.x/pdf</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">60</style></volume><pages><style face="normal" font="default" size="100%">s240</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Background: People aging with longstanding physical disability must deal with competing trajectories. Physical function is declining while confidence in the ability to cope is improving. Social support is likely to decline with retirement &amp;amp; aging significant others while medical management is improving thus increasing life expectancy. Methods: Four focus groups were conducted soliciting advice for health care teams seeing patients aging with a longstanding disability. Participants included people with spinal cord injury (N = 7), postpolio syndrome (N = 7), multiple sclerosis (N = 5), and muscular dystrophy (N = 4). All were at least 45 years of age and living with their disability for at least 8 years. Focus groups transcripts were reviewed and coded using Atlas.ti and a framework of themes was developed. Results: Four major themes emerged which are described in Table 1. Conclusions: Health care providers should acknowledge the skills that people with longstanding disability bring to the task of prioritizing their goals and managing their condition. Healthcare providers can assist them in developing individualized self-management interventions that help to maintain function and independence as they age.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">S4</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Burns, Michael I</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn R</style></author><author><style face="normal" font="default" size="100%">Morris, Megan</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Preparing Patients with Communication Disorders for Medical Interactions</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><publisher><style face="normal" font="default" size="100%">Annual Convention of the American Speech-Language-Hearing Association (ASHA)</style></publisher><pub-location><style face="normal" font="default" size="100%">Atlanta, GA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Patients with communication disorders are a vulnerable healthcare population. SLPs are uniquely qualified to help these patients improve communication with healthcare providers. This presentation will focus on describing how these patients are susceptible to diminished healthcare access, and ways SLPs can help prepare them for improved future medical interactions. &amp;nbsp; &amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Bourgeois, Michelle S</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Communication and aging.</style></title><secondary-title><style face="normal" font="default" size="100%">Physical medicine and rehabilitation clinics of North America</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Phys Med Rehabil Clin N Am</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Aging</style></keyword><keyword><style  face="normal" font="default" size="100%">Communication</style></keyword><keyword><style  face="normal" font="default" size="100%">Communication Barriers</style></keyword><keyword><style  face="normal" font="default" size="100%">Communication Disorders</style></keyword><keyword><style  face="normal" font="default" size="100%">Dysarthria</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Geriatric Assessment</style></keyword><keyword><style  face="normal" font="default" size="100%">Health Behavior</style></keyword><keyword><style  face="normal" font="default" size="100%">Health Services Accessibility</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Incidence</style></keyword><keyword><style  face="normal" font="default" size="100%">Interpersonal Relations</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Memory Disorders</style></keyword><keyword><style  face="normal" font="default" size="100%">Professional-Patient Relations</style></keyword><keyword><style  face="normal" font="default" size="100%">Quality of Life</style></keyword><keyword><style  face="normal" font="default" size="100%">Risk Assessment</style></keyword><keyword><style  face="normal" font="default" size="100%">Sensation Disorders</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2010</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2010 May</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">21</style></volume><pages><style face="normal" font="default" size="100%">309-19</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;People with communication disorders form a diverse group with some experiencing long-standing disorders and others the onset of new disorders in old age. Regardless of age at onset, the burden of communication disorders is cumulative and has important implications for health care providers. Communication serves many roles for older people, not only establishing and maintaining social affiliations but also providing access to health care services. Health care providers should be aware of potential communication disorders and make provision for quiet environments, reading materials at appropriate literacy levels, and longer appointments for people with communication difficulties.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/20494279?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">McMullen, Kara A</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Pathways of change experienced by people aging with disability: a focus group study.</style></title><secondary-title><style face="normal" font="default" size="100%">Disability and Rehabilitation</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Disabil Rehabil</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Adaptation, Psychological</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Aging</style></keyword><keyword><style  face="normal" font="default" size="100%">Disabled Persons</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Focus Groups</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Multiple Sclerosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Postpoliomyelitis Syndrome</style></keyword><keyword><style  face="normal" font="default" size="100%">Quality of Life</style></keyword><keyword><style  face="normal" font="default" size="100%">Spinal Cord Injuries</style></keyword><keyword><style  face="normal" font="default" size="100%">Washington</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2010</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2010</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">32</style></volume><pages><style face="normal" font="default" size="100%">1697-704</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;PURPOSE: To examine the issues related to aging with disability from the perspective of the person with the disabilities. METHOD: Twelve community-dwelling adults with spinal cord injury (SCI), post-polio syndrome (PPS) or multiple sclerosis (MS) participated in focus groups where they were asked open-ended questions about changes related to aging with disability, accommodations made and perspectives on the future. RESULTS: Results of qualitative analysis suggested five major themes related to aging with a disability: (1) Participant identity, including comments about how participants described themselves and their lives with a long-standing disability; (2) Physical pathways including comments about the progression of physical symptoms; (3) Psychosocial pathways, including descriptions of adaptations to disability, the development of emotional well-being and strategies to deal with disability; (4) Changing health care, reflecting improvement noted over time in health care services; and (5) Concerns about the future, including comments reflecting participant uncertainty about the potential course of disability. CONCLUSIONS: The process of aging with disability was characterised by multiple pathways. Some, including positive psychosocial adjustment and medical advancements, were favourable, while others, including physical decline, were not. The co-existence of high quality of life in the presence of physical decline is consistent with a larger literature in older adults, and future research should focus on identifying aging factors that may contribute to the buffering the psychological impact of physical decline.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">20</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/20225933?dopt=Abstract</style></custom1></record></records></xml>