<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Bamer, Alyssa M</style></author><author><style face="normal" font="default" size="100%">Kim, Jiseon</style></author><author><style face="normal" font="default" size="100%">Chung, Hyewon</style></author><author><style face="normal" font="default" size="100%">Salem, Rana</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2018</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2018 Jan</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">11</style></volume><pages><style face="normal" font="default" size="100%">99-107</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;b&gt;BACKGROUND: &lt;/b&gt;Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and often do not provide norms. PROMIS and Neuro-QOL measures, developed with modern psychometric methods, use a common metric and provide population norms.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;OBJECTIVE: &lt;/b&gt;To create symptom profiles and compare symptoms and QOLIs of people living with MS to a US general population sample.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;METHODS: &lt;/b&gt;Data from observational cross-sectional survey studies of 1544 community dwelling individuals with MS were analyzed. T-tests and non-parametric tests were used to examine whether symptoms or QOLIs of people with MS differed from the general US population. Regression analyses were used to adjust differences for age and sex. Measures included PROMIS or NeuroQoL anxiety, depression, fatigue, sleep disturbance and related impairment, pain interference, physical function, satisfaction with social roles, and applied cognition. Symptom levels were also compared by age, gender, and disability level.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;RESULTS: &lt;/b&gt;Scores on all health domains were statistically significantly (all p&amp;nbsp;&amp;lt;&amp;nbsp;0.001) worse than the general US population and six domains had scores worse by half standard deviation or more. These differences remained significant after adjusting for age and sex.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;CONCLUSIONS: &lt;/b&gt;Individuals with MS report clinically meaningful worse health compared to the general population across multiple health related domains. Symptom profiles utilizing PROMIS or NeuroQoL measures can be used to quickly assess symptom levels in an individual or group.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">1</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Silverman, Arielle M</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Pitonyak, Jennifer S</style></author><author><style face="normal" font="default" size="100%">Nelson, Ian K</style></author><author><style face="normal" font="default" size="100%">Matsuda, Patricia N</style></author><author><style face="normal" font="default" size="100%">Kartin, Deborah A</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></secondary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Instilling positive beliefs about disabilities: pilot testing a novel experiential learning activity for rehabilitation students.</style></title><secondary-title><style face="normal" font="default" size="100%">Disability and Rehabilitation</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Attitudes</style></keyword><keyword><style  face="normal" font="default" size="100%">occupational therapy</style></keyword><keyword><style  face="normal" font="default" size="100%">physical therapy</style></keyword><keyword><style  face="normal" font="default" size="100%">professional development</style></keyword><keyword><style  face="normal" font="default" size="100%">simulation</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2017</style></year><pub-dates><date><style  face="normal" font="default" size="100%">02/2017</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://dx.doi.org/10.1080/09638288.2017.1292321</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Purpose: To develop and test a novel impairment simulation activity to teach beginning rehabilitation students how people adapt to physical impairments.&lt;/p&gt;
&lt;p&gt;Methods: Masters of Occupational Therapy students (n&amp;thinsp;=&amp;thinsp;14) and Doctor of Physical Therapy students (n&amp;thinsp;=&amp;thinsp;18) completed the study during the first month of their program. Students were randomized to the experimental or control learning activity. Experimental students learned to perform simple tasks while simulating paraplegia and hemiplegia. Control students viewed videos of others completing tasks with these impairments. Before and after the learning activities, all students estimated average self-perceived health, life satisfaction, and depression ratings among people with paraplegia and hemiplegia.&lt;/p&gt;
&lt;p&gt;Results: Experimental students increased their estimates of self-perceived health, and decreased their estimates of depression rates, among people with paraplegia and hemiplegia after the learning activity. The control activity had no effect on these estimates.&lt;/p&gt;
&lt;p&gt;Conclusions: Impairment simulation can be an effective way to teach rehabilitation students about the adaptations that people make to physical impairments. Positive impairment simulations should allow students to experience success in completing activities of daily living with impairments. Impairment simulation is complementary to other pedagogical methods, such as simulated clinical encounters using standardized patients.&lt;/p&gt;
&lt;p&gt;Implication of Rehabilitation:&lt;/p&gt;
&lt;ul&gt;
	&lt;li&gt;
		It is important for rehabilitation students to learn how people live well with disabilities.&lt;/li&gt;
	&lt;li&gt;
		Impairment simulations can improve students&amp;rsquo; assessments of quality of life with disabilities.&lt;/li&gt;
	&lt;li&gt;
		To be beneficial, impairment simulations must include guided exposure to effective methods for completing daily tasks with disabilities.&lt;/li&gt;
&lt;/ul&gt;
</style></abstract><section><style face="normal" font="default" size="100%">epub</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Silverman, Arielle M</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Cohen, Geoffrey L</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Solace in Solidarity: Disability Friendship Networks Buffer Well-Being.</style></title><secondary-title><style face="normal" font="default" size="100%">Rehabil Psychol</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2017</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2017 Apr 10</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;b&gt;PURPOSE/OBJECTIVE: &lt;/b&gt;To determine whether having friends who share one&amp;#39;s disability experiences is associated with higher well-being, and whether these friendships buffer well-being from disability-related stressors. Research Method/Design: In 2 cross-sectional studies, adults with long-term physical disabilities identified close friends who shared their diagnosis. We assessed well-being as a function of the number of friends that participants identified in each group. Study 1 included 71 adults with legal blindness living in the United States, while Study 2 included 1,453 adults in the United States with either muscular dystrophy (MD), multiple sclerosis (MS), post-polio syndrome (PPS), or spinal cord injury (SCI).&lt;/p&gt;
&lt;p&gt;&lt;b&gt;RESULTS: &lt;/b&gt;In Study 1, having more friends sharing a blindness diagnosis was associated with higher life satisfaction, even controlling for the number of friends who were not blind. In Study 2, Participants with more friends sharing their diagnosis reported higher quality of life and satisfaction with social role participation. Participants with more friends sharing their diagnosis also showed and attenuated associations between the severity of their functional impairment and their quality of life and social role satisfaction, suggesting that their friendships buffered the impact of their functional impairment on well-being. Participants reporting more friends with any physical disability showed similar benefits.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;CONCLUSIONS/IMPLICATIONS: &lt;/b&gt;Friends with disabilities can offer uniquely important informational and emotional support resources that buffer the impact of a functional impairment on well-being. Psychosocial interventions should help people with long-term disabilities build their peer support networks. (PsycINFO Database Record&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Silverman, Arielle M</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Bouncing back again, and again: a qualitative study of resilience in people with multiple sclerosis.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2016 Feb 15</style></date></pub-dates></dates><pages><style face="normal" font="default" size="100%">1-9</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Purpose The purpose of this study was to describe the meaning of resilience, factors facilitating resilience and barriers to resilience, from the perspective of persons with multiple sclerosis (MS), their care partners and community stakeholders. Method We conducted four focus groups: two with middle-aged (36-62 years) individuals with MS [one with men (n&amp;thinsp;=&amp;thinsp;6) and one with women (n&amp;thinsp;=&amp;thinsp;6)], one for partners of individuals with MS (n&amp;thinsp;=&amp;thinsp;11) and one with community stakeholders serving people with MS (n&amp;thinsp;=&amp;thinsp;9). We asked participants to describe what resilience means to them, what factors facilitate resilience and what barriers to resilience they perceive. We analyzed the focus group transcripts for emerging themes and sub-themes. Results Participants found it difficult to generate a concise definition of resilience, but they generated evocative descriptions of the concept. Psychological adaptation, social connection, life meaning, planning and physical wellness emerged as facilitators of resilience. Resilience depletion, negative thoughts and feelings, social limitations, social stigma and physical fatigue emerged as barriers to resilience. Conclusion The unpredictable nature of MS can present unique challenges to resilient adjustment, especially during middle age. However, several factors can contribute to resilience and quality of life, and these factors are amenable to intervention. Implications for Rehabilitation Resilience is the capacity to bounce back and thrive when faced with challenges. People with MS develop resilience through psychological adaptation, social connection, life meaning, planning ahead and physical wellness. Barriers to resilience with MS include burnout, negative thoughts and feelings, social difficulties, stigma and fatigue. Interventions should address both individual and social factors that support resilience, such as promoting positive thinking, planning and engagement in meaningful activities.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Bagli, Nikki</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Incidence and age of onset of chronic comorbid health conditions</style></title><secondary-title><style face="normal" font="default" size="100%">Annual Meeting of the Gerontological Society of North America</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Edwards, Karlyn A</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Battalio, Samuel L</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Relative Importance of Baseline Pain, Fatigue, Sleep, and Physical Activity: Predicting Change in Depression in Adults With Multiple Sclerosis.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2016 Mar 23</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: To determine whether baseline levels of pain, fatigue, sleep disturbance, and physical activity measured at the initial assessment predicted the development of or improvement of depression 3.5 years later, while controlling for sex, age, and disease severity. DESIGN: Observational, longitudinal survey study. SETTING: A community-based population sample. PARTICIPANTS: Adults with multiple sclerosis (MS) (N=489). INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURE: Primary outcome was classification of depression group measured using a Patient Health Questionnaire-9 cutoff score&amp;nbsp;&amp;ge;10, indicating probable major depression. RESULTS: Fatigue severity (odds ratio, 1.19; 95% confidence interval, 1.12-1.26; P&amp;lt;.0001) and sleep disturbance (odds ratio, 1.06; 95% confidence interval, 1.02-1.10; P=.001) predicted probable major depression 3.5 years later among those not depressed at the initial assessment. An effect of age (odds ratio, .96; 95% confidence interval, .92-.99; P=.008) was found among those who developed depression, indicating that younger adults were more likely to develop depression. Pain, fatigue, sleep, and physical activity at baseline were not significantly associated with recovery from depression among those depressed at the initial assessment. CONCLUSIONS: Fatigue and sleep may contribute to the development of depression. Clinical trial research targeting these variables to determine their influence on depression is warranted.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Battalio, Samuel L</style></author><author><style face="normal" font="default" size="100%">Silverman, Arielle M</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Edwards, Karlyn A</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Resilience and Function in Adults With Physical Disabilities: An Observational Study.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2016 Dec 18</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;b&gt;OBJECTIVES: &lt;/b&gt;To determine if resilience is uniquely associated with functional outcomes (satisfaction with social roles, physical functioning, and quality of life) in individuals with physical disabilities, after controlling for measures of psychological health (depression and anxiety) and symptom severity (pain, fatigue, and sleep disturbance); and to examine the potential moderating effect of sex, age, and diagnosis on the hypothesized associations between resilience and function.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;DESIGN: &lt;/b&gt;Cross-sectional survey study.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;SETTING: &lt;/b&gt;Surveys were mailed (81% response rate) to a community sample of 1949 individuals with multiple sclerosis, muscular dystrophy, postpoliomyelitis syndrome, or spinal cord injury. Participants were recruited through the Internet or print advertisement (28%), a registry of previous research participants who indicated interest in future studies (21%), a departmental registry of individuals interested in research (19%), disability-specific registries (18%), word of mouth (10%), or other sources (3%).&lt;/p&gt;
&lt;p&gt;&lt;b&gt;PARTICIPANTS: &lt;/b&gt;Convenience sample of community-dwelling adults aging with physical disabilities (N=1574), with a mean Connor-Davidson Resilience Scale (10 items) score of&amp;nbsp;29.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;INTERVENTIONS: &lt;/b&gt;Not applicable.&lt;/p&gt;
&lt;p&gt;&lt;b&gt;MAIN OUTCOME MEASURES: &lt;/b&gt;Patient-Reported Outcomes Measurement Information System measures of Satisfaction with Social Roles and Activities and Physical Functioning, the World Health Organization&amp;#39;s brief Older People&amp;#39;s Quality of Life Questionnaire, and the Connor-Davidson Resilience Scale (10 items).&lt;/p&gt;
&lt;p&gt;&lt;b&gt;RESULTS: &lt;/b&gt;After controlling for age, age squared, sex, diagnosis, psychological health, and symptom severity, resilience was significantly and positively associated with satisfaction with social roles (&amp;beta;=.17, P&amp;lt;.001) and quality of life (&amp;beta;=.39, P&amp;lt;.001), but not physical function (&amp;beta;=.04, P&amp;gt;.05). For every 1-point increase in scores of resilience, there was an increase of .50 in the quality of life score and .20 in the satisfaction with social roles score. Sex also moderated the association between resilience and satisfaction with social roles (F1,1453=4.09, P=.043).&lt;/p&gt;
&lt;p&gt;&lt;b&gt;CONCLUSIONS: &lt;/b&gt;The findings extend past research, providing further evidence indicating that resilience plays a unique role in nonphysical functional outcomes among individuals with physical disabilities.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Gillanders, David T</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">The role of pain acceptance on function in individuals with disabilities: a longitudinal study.</style></title><secondary-title><style face="normal" font="default" size="100%">Pain</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Acceptance</style></keyword><keyword><style  face="normal" font="default" size="100%">Chronic Pain</style></keyword><keyword><style  face="normal" font="default" size="100%">Pain intensity</style></keyword><keyword><style  face="normal" font="default" size="100%">Physical function</style></keyword><keyword><style  face="normal" font="default" size="100%">Sleep quality</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2016 Jan</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">157</style></volume><pages><style face="normal" font="default" size="100%">247-54</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Having higher levels of pain acceptance has been shown to be associated positively with quality of life in patients with chronic pain, but its role in adjustment to chronic pain among individuals with physical disabilities living in the community is not known. Moreover, issues related to item overlap between measures of pain acceptance and measures of patient function have limited the conclusions that can be drawn from previous research in this area. To better understand the role that pain acceptance plays in patient function, we administered measures of pain acceptance, pain intensity, depressive symptoms, and function to 392 individuals with physical disabilities, and the pain, symptom, and function measures were readministered 3.5 years later. Analyses evaluated the main and interaction effects of initial pain acceptance on subsequent changes in pain and function. Having higher levels of pain acceptance-in particular as reflected by a willingness to engage in activities despite pain-resulted in less increase in pain intensity and more improvements in pain interference, physical function, depressive symptoms, and sleep quality. The findings indicate that previous research supporting the importance of pain acceptance to function in patients from health care settings extends to individuals with chronic pain living in the community. Moreover, they indicate that pain acceptance may have long-lasting (up to 3.5 years) beneficial effects on subsequent pain and function and on the association between change in pain and depression. Research to examine the potential benefits of community-based treatments that increase pain acceptance is warranted.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">1</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Self-reported incidence and age of onset of chronic comorbid medical conditions in adults aging with long-term physical disability.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2016 Feb 18</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Adults with long-term disability are living longer and may experience accelerated aging. More information is needed to understand the incidence of chronic comorbid medical conditions in this population. OBJECTIVE: To examine the incidence, prevalence, age of onset and predictors of five chronic conditions in a sample of adults with long-term physical disability. METHODS: Longitudinal self-report surveys were mailed to 1594 adults with multiple sclerosis, muscular dystrophy, post-polio syndrome or spinal cord injury twice, 3.5 years apart. Survey questions assessed demographics (date of birth, sex, income, disability type, height/weight), self-reported diagnosis of coronary heart disease, hypertension, arthritis, diabetes and cancer, and health behaviors (alcohol use, smoking, physical activity). RESULTS: Over the course of the study, the most commonly reported new onset chronic comorbid medical condition was arthritis (percent incidence&amp;nbsp;=&amp;nbsp;14%), followed by hypertension (9%) and cancer (7%). Report of a new condition was greatest in adults aged between 56 and 65 years, and risk factors included greater BMI, waist circumference, and the presence of another chronic comorbid medical condition at baseline. CONCLUSIONS: Chronic comorbid medical conditions are prevalent in persons with long-term physical disability. Midlife appears to be the period of greatest risk for onset of a new condition, and risk for incidence increases in the presence of other chronic comorbid medical conditions. Modifiable risk factors include BMI and waist circumference. Future research should explore whether changes in modifiable factors at midlife or earlier (e.g., diet, exercise) would help prevent or delay onset of comorbid conditions in this population.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Bagli, Nikki</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Testing the efficacy of an evidence-based wellness program for older adults with physical disability</style></title><secondary-title><style face="normal" font="default" size="100%">Annual Meeting of the Gerontological Society of North America</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2016</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Lauer, Cara</style></author><author><style face="normal" font="default" size="100%">Denison, Paige</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Adapting an Evidence-Based Wellness Program for Older Adults with Long-Term Physical Disabilities</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><publisher><style face="normal" font="default" size="100%">Workshop at the American Society on Aging's (ASA) Aging in America (AiA) Conference, Chicago, Illinois</style></publisher><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Description&lt;/p&gt;
&lt;p&gt;Recent efforts have focused on enhancing wellness in community living seniors using evidence-based health promotion programs. However, very few of these programs have been tested in individuals aging with long-term physical disabilities (LTPD), such as muscular dystrophy, multiple sclerosis, post-polio syndrome or spinal cord injury. This presentation describes a new academic-community partnership to adapt and test a NCOA endorsed intervention (EnhanceWellness) in people aging with LTPD.&lt;/p&gt;
&lt;p&gt;Objectives&lt;/p&gt;
&lt;ol&gt;
	&lt;li&gt;
		By the end of this presentation attendees will be able to describe EnhanceWellness, an NCOA endorsed community-based health promotion program for older adults.&lt;/li&gt;
	&lt;li&gt;
		By the end of this presentation attendees will understand the prevalence and impact of long-term physical disabilities, including spinal cord injury and muscular dystrophy, in older adults.&lt;/li&gt;
	&lt;li&gt;
		By the end of this presentation attendees will be able to describe necessary adaptations to make interventions originally designed for older adults applicable for those aging with long-term physical disability.&lt;/li&gt;
	&lt;li&gt;
		By the end of this presentation attendees will have an appreciation for the challenges and opportunities present in integration of aging and physical disability service networks.&lt;/li&gt;
&lt;/ol&gt;
&lt;p&gt;Outcomes&lt;/p&gt;
&lt;p&gt;Pilot data from our first participants (n=8), which will include standardized scales measuring quality of life, emotional well-being, physical and social health and overall satisfaction with the program. Discussion of the adaptation process, including lessons learned, identification of challenges, and ways to remediate the inter-institutional and cultural barriers that exist between disability researchers and community agencies providing services to older adult&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">McMullen, Kara</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Brief Report: Sexual Function, Satisfaction and use of Aids for Sexual Activity in Middle-Aged Adults with Long-Term Physical Disability</style></title><secondary-title><style face="normal" font="default" size="100%">Topics in Spinal Cord Injury Rehabilitation</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">muscular dystrophy</style></keyword><keyword><style  face="normal" font="default" size="100%">post-polio syndrome</style></keyword><keyword><style  face="normal" font="default" size="100%">sexual dysfunction</style></keyword><keyword><style  face="normal" font="default" size="100%">spinal cord injury</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">07/2015</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">Summer 2015, Volume 21, No 3</style></volume><pages><style face="normal" font="default" size="100%">227-232</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Background: Sexuality is an important aspect of quality of life in individuals with disabilities, yet little is known about what factors contribute to sexual satisfaction as these individuals age. Method: Middle-aged adults with physical disabilities completed a cross-sectional survey that included measures of sexual activity, function, and satisfaction. Results: Consistent with studies of able-bodied adults, sexual function was the strongest predictor of satisfaction. however, depression also predicted sexual satisfaction for women. Use of aids for sexual activity varied by disability type and was generally associated with better function. Lowest levels of sexual satisfaction were reported by men with SCI. Conclusion: Depression may negatively impact sexual satisfaction in women, beyond contributions of sexual dysfunction, and effective use of sexual aids may improve function in this population.&lt;/p&gt;
</style></abstract><section><style face="normal" font="default" size="100%">227</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Elzea, Jamie L</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author><author><style face="normal" font="default" size="100%">Gibbons, Laura E</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Efficacy of A Telephone-Delivered Self-Management Intervention For Persons With Multiple Sclerosis: a Randomized Controlled Trial With a One-Year Follow-Up.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2015 Nov</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">96</style></volume><pages><style face="normal" font="default" size="100%">1945-1958</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: To evaluate the efficacy of a telephone-delivered self-management intervention for fatigue, pain, and depression in adults with multiple sclerosis (MS). DESIGN: Single-center, randomized (1:1), single blind (outcome assessors) parallel-group trial with a primary end-point of post-treatment (9-11 weeks post-randomization) and long-term follow-ups at 6- and 12-months. SETTING: Telephone-delivered across the United States. PARTICIPANTS: Adults with MS (N=163) with fatigue, chronic pain, and/or moderate depressive symptoms (age range 25-76 years). INTERVENTIONS: Eight-week individual telephone-delivered self-management intervention (T-SM: n=75) versus an eight-week individual telephone-delivered MS education intervention (T-ED: n=88). MAIN OUTCOME MEASURES: The primary outcome was the proportion who achieved a &amp;gt; 50% decrease in one or more symptom - fatigue impact, pain interference, and/or depression severity. Secondary outcomes included continuous measures of pain, fatigue impact, depression, self-efficacy, activation, health-related quality of life, resilience, and affect. RESULTS: For our primary outcome, 58% of those in the T-SM and 46% of those in the T-Ed had a &amp;gt; 50% reduction in one or more symptom; this difference was not statistically significant (OR: 1.50, 95% CI: 0.77 to 2.93, p = 0.238). Participants in both groups significantly improved from baseline to post-treatment in primary and secondary outcome measures (p &amp;lt; 0.05). T-SM participants reported significantly higher treatment satisfaction and therapeutic alliance and greater improvements in activation, positive affect, and social roles. Improvements were generally maintained at 6- and 12-months. CONCLUSIONS: Both interventions resulted in short- and long-term, clinically meaningful benefits. The study demonstrated that the telephone is an effective method for engaging participants in and extending the reach of care for individuals with MS.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">11</style></issue><section><style face="normal" font="default" size="100%">1945</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>13</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Snyder, S</style></author><author><style face="normal" font="default" size="100%">Lauer, C</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">From UW to US: Developing and Disseminating Evidence-Based Programs.</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><publisher><style face="normal" font="default" size="100%">Oral Presentation at Lehmann's Day, Seattle, Washington</style></publisher><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Putnam, Michelle</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Measures of aging with disability in U.S. secondary data sets: Results of a scoping review.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2015 Jul 22</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: There remain significant knowledge gaps in our understanding of aging with long-term disability. It is possible that important advances in knowledge could be gained using existing secondary data sets. However, little is known regarding which of the data sets available to researchers contain the age-related measures needed for this purpose, specifically age of onset and/or duration of disability measures. OBJECTIVE: To better understand the capacity to investigate aging with long-term disability (e.g. mobility limitation) and aging with long-term chronic conditions (e.g. spinal cord injury, multiple sclerosis) using extant data. METHODS: Public use national and regional data sets were identified through existing reports, web-based searches, and expert nomination. The age- and disability-related variables, including age of onset and duration of disability, were tabulated for data sets meeting inclusion criteria. Analysis was descriptive. RESULTS: A total of N&amp;nbsp;=&amp;nbsp;44 data sets were reviewed. Of these, 22 contained both age and disability variables. Within these 22 data sets, 9 contained an age of onset or duration of disability variable. Six of the nine data sets contained age of diagnosis for a single or set of health conditions. Onset of functional limitation is in two, and onset of self-reported and/or employment disability is in four, of the nine data sets respectively. CONCLUSIONS: There is some, but limited opportunity to investigate aging with long-term disability in extant U.S. public use secondary data sets.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Stobbe, G.</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Hertz, D.</style></author></secondary-authors><tertiary-authors><author><style face="normal" font="default" size="100%">Kraft, G.</style></author><author><style face="normal" font="default" size="100%">Alschuler, K.</style></author><author><style face="normal" font="default" size="100%">Wundes, A.</style></author><author><style face="normal" font="default" size="100%">Unruh, K.</style></author><author><style face="normal" font="default" size="100%">Reynolds, P.</style></author><author><style face="normal" font="default" size="100%">Kalb, R.</style></author><author><style face="normal" font="default" size="100%">Beier, M.</style></author><author><style face="normal" font="default" size="100%">Alexander, K.</style></author><author><style face="normal" font="default" size="100%">Scott, J.</style></author><author><style face="normal" font="default" size="100%">Johnson, K.</style></author></tertiary-authors></contributors><titles><title><style face="normal" font="default" size="100%">MS ECHO: Innovative Project to Improve the Capacity of Providers  in Underserved Areas to Treat MS</style></title><secondary-title><style face="normal" font="default" size="100%">Consortium of Multiple Sclerosis Centers</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>13</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Johnson, KL</style></author><author><style face="normal" font="default" size="100%">Hertz, D.</style></author><author><style face="normal" font="default" size="100%">Alschuler, K.</style></author><author><style face="normal" font="default" size="100%">Stobbe, G.</style></author><author><style face="normal" font="default" size="100%">Scott, J.</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Multiple Sclerosis Project Echo: Outreach to Rural Providers to Provide Innovative Collaborative Training Using Video Conferencing</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><pub-location><style face="normal" font="default" size="100%">Oral Presentation at NARRTC's Annual Conference, Anexandria, Virginia</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Silverman, Arielle M</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Resilience Predicts Functional Outcomes in People Aging With Disability: A Longitudinal Investigation.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2015 Mar 7</style></date></pub-dates></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVES: To investigate the links between resilience and depressive symptoms, social functioning, and physical functioning in people aging with disability and to investigate the effects of resilience on change in functional outcomes over time. DESIGN: Longitudinal postal survey. SETTING: Surveys were mailed to a community sample of individuals with 1 of 4 diagnoses: multiple sclerosis, muscular dystrophy, postpoliomyelitis syndrome, or spinal cord injury. The survey response rate was 91% at baseline and 86% at follow-up. PARTICIPANTS: A convenience sample of community-dwelling individuals (N=1594; age range, 20-94y) with multiple sclerosis, muscular dystrophy, postpoliomyelitis syndrome, or spinal cord injury. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Patient Health Questionnaire-9 (to assess depressive symptoms) and Patient Reported Outcomes Measurement Information System (to assess social role satisfaction and physical functioning). RESULTS: At baseline, resilience was negatively correlated with depressive symptoms (r=-.55) and positively correlated with social and physical functioning (r=.49 and r=.17, respectively). Controlling for baseline outcomes, greater baseline resilience predicted a decrease in depressive symptoms (partial r=-.12) and an increase in social functioning (partial r=.12) 3 years later. CONCLUSIONS: The findings are consistent with a view of resilience as a protective factor that supports optimal functioning in people aging with disability.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Thomas E. McNalley</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Katherine G. Schomer</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Review of Secondary Health Conditions in Postpolio Syndrome: Prevalence and Effects of Aging.</style></title><secondary-title><style face="normal" font="default" size="100%">Am J Phys Med Rehabil</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Aug 13</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">94</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: This study sought to better understand the prevalence and the severity of secondary health conditions in individuals with postpolio syndrome (PPS) as well as the association between these conditions and aging. DESIGN: A scoping literature review was conducted searching electronic databases for studies published from 1986 to 2011. The scoping review provided information regarding the prevalence and associations of secondary health conditions in PPS with age or other duration-related variables. RESULTS: The findings indicate that (1) individuals with PPS experience a number of serious secondary health conditions; (2) the most common conditions or symptoms are fatigue, pain, respiratory and sleep complaints, and increased risk for falls; (3) reports of the associations between the frequency or the severity of conditions and age-related factors are variable, perhaps because of methodological inconsistencies between studies; and (4) there is a marked lack of longitudinal research examining the natural course of health conditions in people aging with PPS. CONCLUSIONS: Longitudinal research is needed to understand the course of health conditions and the impact of multiple secondary conditions in people aging with PPS. Efforts are also needed to develop and test the efficacy of interventions to prevent these secondary health conditions or reduce their negative impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue><section><style face="normal" font="default" size="100%">139</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Verall, AM</style></author><author><style face="normal" font="default" size="100%">Johnson, KL</style></author><author><style face="normal" font="default" size="100%">Yorkston, K M</style></author><author><style face="normal" font="default" size="100%">Matter, B</style></author><author><style face="normal" font="default" size="100%">Smith, A</style></author><author><style face="normal" font="default" size="100%">Nelson, I</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Translating Research Findings into Useful Tools for Patients and Providers</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><pub-location><style face="normal" font="default" size="100%">Poster presented at Lehmann's Day, Seattle, Washington</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Rodakowski, Juleen</style></author><author><style face="normal" font="default" size="100%">Skidmore, Elizabeth R</style></author><author><style face="normal" font="default" size="100%">Anderson, Stewart J</style></author><author><style face="normal" font="default" size="100%">Begley, Amy</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Buhule, Olive D</style></author><author><style face="normal" font="default" size="100%">Boninger, Michael L</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Additive effect of age on disability for individuals with spinal cord injuries.</style></title><secondary-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Activities of Daily Living</style></keyword><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Age Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Age of Onset</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Cohort Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Disability Evaluation</style></keyword><keyword><style  face="normal" font="default" size="100%">Disabled Persons</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Follow-Up Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Injury Severity Score</style></keyword><keyword><style  face="normal" font="default" size="100%">Length of Stay</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Paraplegia</style></keyword><keyword><style  face="normal" font="default" size="100%">Prospective Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Quadriplegia</style></keyword><keyword><style  face="normal" font="default" size="100%">Risk Assessment</style></keyword><keyword><style  face="normal" font="default" size="100%">Spinal Cord Injuries</style></keyword><keyword><style  face="normal" font="default" size="100%">Time Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Treatment Outcome</style></keyword><keyword><style  face="normal" font="default" size="100%">Young Adult</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Jun</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">95</style></volume><pages><style face="normal" font="default" size="100%">1076-82</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: To examine the additive effect of age on disability for adults with spinal cord injury (SCI). DESIGN: Prospective cohort study. SETTING: SCI Model Systems. PARTICIPANTS: Individuals with SCI (median age at injury, 32 y; range, 6-88 y) with a discharge motor FIM score and at least 1 follow-up motor FIM score who also provided measures of other covariates (N=1660). Of the total sample, 79% were men, 72% were white, 16% had incomplete paraplegia, 33% had complete paraplegia, 30% had incomplete tetraplegia, and 21% had complete tetraplegia. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: The primary study outcome was the motor subscale of the FIM. A mixed-models approach was used to examine the additive effect of age on disability for individuals with SCI. RESULTS: When controlling for motor FIM at discharge from rehabilitation, level and severity of injury, age at injury, sex, race, and the age &amp;times; time interaction were not significant (P=.07). Age at the time of SCI was significantly associated with motor FIM (F1,238=22.49, P&amp;lt;.001). Two sensitivity analyses found significant interactions for both age &amp;times; time (P=.03, P=.02) and age &amp;times; time-square (P=.01, P=.006) models. Trajectory of motor FIM scores is moderated slightly by age at the time of injury. The older participants were at the time of injury, the greater the curvature and the more rapid decline were found in later years. CONCLUSIONS: These findings indicate that age moderately influences disability for some individuals with SCI: the older the age at the time of injury, the greater the influence age has on disability. The findings serve as an important empirical foundation for the evaluation and development of interventions designed to augment accelerated aging experienced by individuals with SCI.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">6</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Fatigue and Social Function in Persons with Physical Disability: A Short-term Longitudinal Analysis</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2014</style></date></pub-dates></dates><pub-location><style face="normal" font="default" size="100%">Poster presented at International Society for Quality of Life's (ISOQOL) 21st Annual Conference, Berlin, Germany</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Terrill, Alexandra L</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Modeling Secondary Health Conditions in Adults Aging With Physical Disability.</style></title><secondary-title><style face="normal" font="default" size="100%">J Aging Health</style></secondary-title><alt-title><style face="normal" font="default" size="100%">J Aging Health</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">04/2014</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">Apr;26</style></volume><pages><style face="normal" font="default" size="100%">335-59</style></pages><language><style face="normal" font="default" size="100%">ENG</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVES: To test a conceptual model of secondary health conditions, age, and function in persons aging with long-term physical disabilities. METHODS: Surveys were collected from 1,862 adults with spinal cord injury, neuromuscular disease, multiple sclerosis, or post-polio syndrome. Structural equation modeling was used to build a model describing relationships among physical and psychosocial secondary health conditions, pain, functional impairments, chronic medical conditions, and age. RESULTS: In total, 12 individual symptom or function domains (latent factors) were identified, grouped into 5 broader factors. Increasing age was associated with greater rates of physical and health problems and poorer function, and showed curvilinear relationships with pain and psychosocial difficulties. DISCUSSION: These data support a biopsychosocial model of secondary health conditions in adults aging with physical disability and suggest a five-factor approach for conceptualizing secondary conditions and their impact. Results also emphasize the importance of age in symptom severity and impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">3</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/24388897?dopt=Abstract</style></custom1><section><style face="normal" font="default" size="100%">335</style></section></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Salem, Rana</style></author><author><style face="normal" font="default" size="100%">Bamer, Alyssa M</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Johnson, Kurt L</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Obesity and symptoms and quality of life indicators of individuals with disabilities.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Disabil Health J</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Jan</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">7</style></volume><pages><style face="normal" font="default" size="100%">124-30</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">BACKGROUND: Health risks of obesity are well known, but effects of obesity on health-related quality of life (HRQOL) have not been well-studied in people with physical disabilities.

OBJECTIVE/HYPOTHESIS: We examined the association between obesity and HRQOL in people with disabilities relative to the general US population. We hypothesized (a) overall, individuals with disabilities will report worse HRQOL than the general US population and (b) obese individuals with disabilities will report worse HRQOL than non-obese individuals.

METHODS: Individuals with muscular dystrophy, multiple sclerosis, post-polio syndrome, and spinal cord injury (N = 1849) completed Patient Reported Outcomes Measurement Information System (PROMIS) measures of fatigue, pain interference, physical and social function, depression, sleep disturbance, and sleep-related impairment. Participants were classified as obese or non-obese based on self-reported weight and height (BMI) and/or waist circumference (WC). PROMIS T-scores were compared to norms and between obesity groups.

RESULTS: Mean BMI was 26.4 kg/m(2) with 23.4% classified as obese. Mean WC was 37.5 inches (males) and 34.0 inches (females); 26.4% reported abdominal obesity. Based on BMI and/or WC, 33.3% (n = 616) were classified obese. Compared to PROMIS norms, obese individuals reported worse HRQOL on all domains (p &lt; 0.0001). Compared to non-obese individuals, obese individuals reported worse functioning on all domains except depression (p &lt; 0.01). Obese individuals with MS and MD reported worse outcomes than non-obese counterparts.

CONCLUSIONS: Obesity in people with physical disabilities is associated with poorer HRQOL. More research is needed to inform clinicians in identifying obese patients and helping them achieve healthy weight, reduce symptom burden, and improve QOL.</style></abstract><issue><style face="normal" font="default" size="100%">1</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/24411517?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Bamer, Alyssa M</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Predictors of Self-Efficacy in Individuals Aging with a Disability</style></title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Resilience</style></keyword><keyword><style  face="normal" font="default" size="100%">Satisfaction with Social Role</style></keyword><keyword><style  face="normal" font="default" size="100%">Self-Efficacy</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2014</style></date></pub-dates></dates><pub-location><style face="normal" font="default" size="100%">Oral presentation at the International Society fo Quality of Life's (ISOQOL) 21st Annual Meeting, Berlin, Germany</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;h3&gt;
	AIMS&lt;/h3&gt;
&lt;p&gt;To examine the association of self-efficacy (SE) related to management of chronic disease with demographic and clinical indicators in individuals aging with physical disability. Self-efficacy is a critical mediator of human behavior and an important target for interventions to improve health outcomes. Changes in SE have been reported to be the best predictors of response to rehabilitation treatments. Understanding the role of SE in people&amp;rsquo;s ability to successfully self-manage and live effectively with physical limitations is important for designing treatments that can lead to better quality of life (QOL).&lt;/p&gt;
&lt;h3&gt;
	METHODS&lt;/h3&gt;
&lt;p&gt;The University of Washington Self-Efficacy Scale (UW-SES) that conceptualizes SE as perceived confidence in managing challenges related to living with a physical disability was used to measure SE. PROMIS&amp;copy; short forms (version 1) were used to measure pain interference, physical function, fatigue and social soles satisfaction. In addition to demographics we measured social support (the Multi-dimensional Scale of Perceived Social Support), depression (PHQ9), resilience (the Connor-Davidson Resiliency scale), interference with participation, and falls. A multivariate regression model was used to examine associations between SE and demographics, and symptoms or QOL indicators.&lt;/p&gt;
&lt;h3&gt;
	RESULTS&lt;/h3&gt;
&lt;p&gt;858 older people (aged 45+) with muscular dystrophy (MD: 18%), multiple sclerosis (MS: 32%), spinal cord injury (SCI: 26%), or post-polio syndrome (PPS: 24%) who participated in a study of aging with a disability responded to a mail survey. Of the 2,041 people invited 1,862 completed it (91% return rate). About a half of the participants were asked to respond to UWSES. The final multivariate model explained 68% of the variance in self-efficacy and included the following statistically significant independent variables: satisfaction with social roles, resilience, pain interference, interference with participation, social support, fatigue, and employment. Age, gender, marital status, education, income, physical function, depression, falls, and overall mobility were not found to be statistically significantly related to SE.&lt;/p&gt;
&lt;h3&gt;
	CONCLUSIONS&lt;/h3&gt;
&lt;p&gt;There is a strong link between SE, social variables and other clinical indicators including resilience, and symptoms of fatigue and pain. Interventions aimed at increasing SE in older adults living with physical disability should include strategies for improving social participation, increasing resiliency, and management of fatigue and pain. &amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan</style></author><author><style face="normal" font="default" size="100%">Cook, Karon F</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Chen, Wen-Hung</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Prevalence and impact of pain in adults aging with a physical disability: comparison to a US general population sample.</style></title><secondary-title><style face="normal" font="default" size="100%">Clin J Pain</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Apr</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">30</style></volume><pages><style face="normal" font="default" size="100%">307-15</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVES: To describe rates of pain and pain interference in a large sample of adults aging with long-standing physical disabilities, relative to a normative US population sample. METHODS: Self-report survey data was collected for a sample of 1877 individuals with spinal cord injury, neuromuscular disease, postpolio syndrome, or multiple sclerosis. Rates of pain severity and pain interference in these samples were then compared with those taken from a large normative sample (&amp;gt;20,000) collected through the NIH Patient Reported Outcomes Measurement Information System (PROMIS). RESULTS: Individuals with long-standing physical disabilities reported higher levels of pain and pain interference across the lifespan as compared with individuals in the normative sample. In general, individuals with disability did not experience an age-related decrease in pain and pain impact in contrast to those in the normative sample. For 3 disability groups (neuromuscular disease, postpolio syndrome, and multiple sclerosis), pain interference remained elevated and significantly higher than national norms in the &amp;quot;postretirement&amp;quot; period (ie, age 65 to 74). DISCUSSION: Results from this study provide a large scale data on prevalence rates of pain and pain interference in this population. Findings underscore the prevalence and impact of pain in persons with disabilities and suggest that individuals with disability may not experience the same degree of decrease in pain interference in later life that is typical of the US population. Those aging with disability may be especially at risk for pain-related impairment in later life.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">4</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Terrill, Alexandra L</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></secondary-authors><tertiary-authors><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author></tertiary-authors><subsidiary-authors><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></subsidiary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Resilience, age, and perceived symptoms in persons with long-term physical disabilities</style></title><secondary-title><style face="normal" font="default" size="100%">J Health Psych</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://hpq.sagepub.com/content/early/2014/05/07/1359105314532973.full.pdf?ijkey=91rn6jjmQeglLhH&amp;keytype=ref</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">published online 8 May 2014</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Resilience may mitigate impact of secondary symptoms such as pain and fatigue on quality of life in persons aging with disability. &amp;nbsp;This study examined resilience in a large sample of individuals with disabling medical conditions by validating the Connor-Davidson Resilience Scale, obtaining descriptive information about resilience and evaluating resilience as a mediator among key secondary symptoms and quality of life using structural equation modeling. &amp;nbsp;Results indicated that the measure&amp;#39;s psychometric properties were adequate in this sample. &amp;nbsp;Resilience was lowest among participants who were middle-aged or younger, and participants with depression. &amp;nbsp;Resilience mediated associations between secondary symptoms and quality of life.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Miró, Jordi</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Social support, depression, and physical disability: Age and diagnostic group effects.</style></title><secondary-title><style face="normal" font="default" size="100%">Disabil Health J</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 Apr</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">7</style></volume><pages><style face="normal" font="default" size="100%">164-72</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Social support is an important resource that may benefit individuals aging with physical disabilities, although its effects may vary depending on age, sex, and type of disability. OBJECTIVES: To (1) examine differences in social support - and how support might vary as a function of age and sex - in samples of individuals with multiple sclerosis (MS), spinal cord injury (SCI), and muscular dystrophy (MD) and (2) understand the extent that associations between different support domains and depression might be moderated by disability diagnosis, sex and age. METHODS: A convenience sample (N&amp;nbsp;=&amp;nbsp;1416) of individuals with MS, SCI, and MD completed surveys that included measures of perceived social support and depressive symptoms. RESULTS: No significant support differences were found between diagnostic groups. There was a gradual decrease in social support with chronological age, and women reported more support than men, particularly friend support. Levels of perceived friend support were negatively associated with depression, and the associations between social support and depression did not differ as a function of age, sex, or diagnosis. CONCLUSIONS: Social support is similarly associated with lower levels of depression for men and women, across disability diagnoses and all ages. Being a man and being older may be associated with lower levels of perceived support. Research is needed to determine if interventions that improve support will decrease depression and improve quality of life in persons with disabilities, particularly for men and individuals who are aging.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">McMullen, Kara</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Carter, Gregory T</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Symptom burden in persons with myotonic and facioscapulohumeral muscular dystrophy.</style></title><secondary-title><style face="normal" font="default" size="100%">Am J Phys Med Rehabil</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Activities of Daily Living</style></keyword><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Age Distribution</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Cross-Sectional Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Fatigue</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Incidence</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Memory Disorders</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Muscular Dystrophy, Facioscapulohumeral</style></keyword><keyword><style  face="normal" font="default" size="100%">Myotonic Dystrophy</style></keyword><keyword><style  face="normal" font="default" size="100%">Pain</style></keyword><keyword><style  face="normal" font="default" size="100%">Prognosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Questionnaires</style></keyword><keyword><style  face="normal" font="default" size="100%">Regression Analysis</style></keyword><keyword><style  face="normal" font="default" size="100%">Risk Assessment</style></keyword><keyword><style  face="normal" font="default" size="100%">Severity of Illness Index</style></keyword><keyword><style  face="normal" font="default" size="100%">Sex Distribution</style></keyword><keyword><style  face="normal" font="default" size="100%">Sickness Impact Profile</style></keyword><keyword><style  face="normal" font="default" size="100%">Vision Disorders</style></keyword><keyword><style  face="normal" font="default" size="100%">Young Adult</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2014 May</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">93</style></volume><pages><style face="normal" font="default" size="100%">387-95</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVE: This study examines the prevalence of pain, fatigue, imbalance, memory impairment, and vision loss in persons with myotonic and facioscapulohumeral dystrophy and their association with functioning. DESIGN: A survey (N = 170) included measures of severity (0-10 scales) and course of these symptoms as well as measures of social integration, home competency, mental health, and productive activity. Descriptive and regression analyses examined the associations between symptoms and functioning. RESULTS: Fatigue (91%), imbalance (82%), and pain (77%) were the most commonly reported. The most severe symptom was fatigue (mean &amp;plusmn; SD severity, 5.14 &amp;plusmn; 2.81), followed by imbalance (4.95 &amp;plusmn; 3.25). Symptoms were most likely to stay the same or worsen since onset. Controlling for potential medical and demographic confounds, symptoms were associated with 17% of the mental health variance, 10% of home competency, 10% of social integration, 16% of productive activity for myotonic dystrophy type 1, and 12% of productive activity for facioscapulohumeral muscular dystrophy. CONCLUSIONS: Pain, fatigue, and imbalance are common in persons with muscular dystrophy. Interventions may be useful to mitigate their impact on functioning. Further research should examine these relationships to guide clinical practices.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">5</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Terrill, Alexandra L</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Validity and utility of the Brandtstadter Tenacious Goal Pursuit/Flexible Goal Adjustment measure in adults aging with long-term physical disabilities</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2014</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2014</style></date></pub-dates></dates><pub-location><style face="normal" font="default" size="100%">Oral presentation at International Society for Quality of Life's (ISOQOL) 21st Annual Conference, Berlin, Germany</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;AIMS: Much evidence suggests age-related changes in the use of assimilative and accommodative coping. However, this area has received little attention in disability research, and no studies have tested the validity of widely used measures of this coping construct in adults aging with long-term physical conditions. The aims of this study were to evaluate the psychometric properties of Brandtstadter&amp;rsquo;s 30-item Tenacious Goal Pursuit and Flexible Goal Adjustment scale (TGP/FGA) in a large sample of middle-aged adults with physically disabling conditions.&lt;/p&gt;
&lt;p&gt;METHODS: 935 middle-aged individuals (aged 46&amp;ndash;67) with physical disability secondary to either spinal cord injury, post-polio syndrome, neuromuscular disease or multiple sclerosis completed a return-by-mail survey that included the 30-item TGP/&amp;nbsp;FGA scale, as well as measures of depression and quality of life.&amp;nbsp;Analyses included confirmatory factor analysis under the rubric of structural equation modeling.&lt;/p&gt;
&lt;p&gt;RESULTS: A model specifying the original 2-factor structure and using all 30 items was a poor fit to the data. Model trimming, including removing items with significant cross-loadings, resulted in a 2-factor structure containing 10 items each. Fit for this revised measure was acceptable [9 2/df = 3.48,&amp;nbsp;CFI = 0.94, RMSEA = 0.05], and internal consistency was established by Cronbach&amp;rsquo;s criteria ([0.70). Age was not significantly associated with the revised TGP subscale, but had a curvilinear relationship with the FGA subscale. Lower scores on TGP (&amp;szlig; = 0.32) and higher scores on FGA (&amp;szlig; = -0.32) subscales were associated with increased depressive symptoms (ps\0.001).&lt;/p&gt;
&lt;p&gt;CONCLUSIONS: A 20-item version of the TGP/FGA measure demonstrates acceptable psychometric qualities in a sample of persons with physical disability. These results also emphasize that a shift toward more accommodative coping may be essential in promoting quality of life for those aging with long-term physical disabilities.&lt;/p&gt;
&lt;p&gt;&amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Molton, Ivan</style></author><author><style face="normal" font="default" size="100%">Hirsh, Adam T</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Age and the role of restricted activities in adjustment to disability related pain.</style></title><secondary-title><style face="normal" font="default" size="100%">J Health Psychol</style></secondary-title><alt-title><style face="normal" font="default" size="100%">J Health Psychol</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 May 29</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">19</style></volume><pages><style face="normal" font="default" size="100%">025-1034</style></pages><language><style face="normal" font="default" size="100%">ENG</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Chronic pain is common in individuals with multiple sclerosis and spinal cord injury and is associated with depressed mood. This may be because pain creates interference in performing and enjoying valued activities. The importance of pain interference may also vary with age, since older adults may have lowered expectations regarding function. This study analyzed relationships among pain variables, age, and mood in 521 individuals with multiple sclerosis or spinal cord injury. As predicted, pain interference mediated the relationship between pain severity and depressed mood. There was no evidence that older adults were less distressed by pain interference than were younger adults.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">8</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/23720543?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Sullivan-Singh, Sarah J</style></author><author><style face="normal" font="default" size="100%">Borson, Soo</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">The association of age, pain, and fatigue with physical functioning and depressive symptoms in persons with spinal cord injury.</style></title><secondary-title><style face="normal" font="default" size="100%">J Spinal Cord Med</style></secondary-title><alt-title><style face="normal" font="default" size="100%">J Spinal Cord Med</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Affect</style></keyword><keyword><style  face="normal" font="default" size="100%">Age Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Chronic Pain</style></keyword><keyword><style  face="normal" font="default" size="100%">Cross-Sectional Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Depression</style></keyword><keyword><style  face="normal" font="default" size="100%">Fatigue</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Health Status</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Motor Activity</style></keyword><keyword><style  face="normal" font="default" size="100%">Outcome Assessment (Health Care)</style></keyword><keyword><style  face="normal" font="default" size="100%">Predictive Value of Tests</style></keyword><keyword><style  face="normal" font="default" size="100%">Regression Analysis</style></keyword><keyword><style  face="normal" font="default" size="100%">Residence Characteristics</style></keyword><keyword><style  face="normal" font="default" size="100%">Spinal Cord Injuries</style></keyword><keyword><style  face="normal" font="default" size="100%">Young Adult</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Sep</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">36</style></volume><pages><style face="normal" font="default" size="100%">483-91</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">CONTEXT/OBJECTIVE: To describe the relationship of pain and fatigue with physical and psychological functioning in adults with spinal cord injury (SCI).

DESIGN: Cross-sectional survey.

SETTING: Community-based survey.

PARTICIPANTS: Convenience sample of individuals with SCI.

INTERVENTION: Not applicable.

OUTCOME MEASURES: Physical functioning (Patient-Reported Outcomes Measurement Information System (PROMIS) Physical Functioning item bank items), depression (Patient Health Questionnaire-9 (PHQ-9)), pain severity (0-10 Numerical Rating Scale (NRS)), and fatigue (0-10 NRS).

RESULTS: Pain and fatigue were independently associated with depression, but only pain was associated with physical functioning. Additionally, depression was more severe among middle-aged participants relative to younger or older participants. Physical functioning declined with increasing age, as well as with higher level of injury.

CONCLUSIONS: The findings support the need for continued development of effective treatments for both pain and fatigue in order to prevent and mitigate the negative effects these symptoms can have on functioning.</style></abstract><issue><style face="normal" font="default" size="100%">5</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/23941796?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, M P</style></author><author><style face="normal" font="default" size="100%">Truitt, A R</style></author><author><style face="normal" font="default" size="100%">Schomer, K G</style></author><author><style face="normal" font="default" size="100%">Yorkston, K M</style></author><author><style face="normal" font="default" size="100%">Baylor, C</style></author><author><style face="normal" font="default" size="100%">Molton, I R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review.</style></title><secondary-title><style face="normal" font="default" size="100%">Spinal Cord</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Spinal Cord</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Dec</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">51</style></volume><pages><style face="normal" font="default" size="100%">882-92</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;STUDY DESIGN: Scoping review. OBJECTIVES: To gain a better understanding of the prevalence, course and association with age of secondary health conditions in individuals with spinal cord injury (SCI). SETTING: Seattle, Washington, USA. METHODS: We performed searches of electronic databases for studies published from 1986-2011 that provided information regarding the prevalence, course or associations with age and duration of secondary health conditions in individuals with SCI. RESULTS: Ninety-two studies were included. The findings indicate that: (1) individuals with SCI experience a number of secondary health conditions, many of which occur at a higher rate in those with SCI than the normative population; (2) the most common conditions or symptoms are pain, bowel and bladder regulation problems, muscle spasms, fatigue, esophageal symptom and osteoporosis; (3) a number of conditions, including cardiovascular disease, diabetes, bone mineral density loss, fatigue and respiratory complications or infections, occur with higher frequency in older individuals or those with longer SCI duration, relative to younger individuals or those with shorter SCI duration; and (4) there is a marked lack of longitudinal research examining the natural course of health conditions in individuals aging with SCI. CONCLUSIONS: The findings support the conclusion that individuals with SCI show signs of &amp;#39;premature aging&amp;#39; in different organ systems. Longitudinal research is needed to understand when problems are most likely to emerge, and to develop and test the efficacy of interventions to prevent these health conditions and their negative impact.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">12</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/24126851?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Katherine G. Schomer</style></author><author><style face="normal" font="default" size="100%">Artherholt, Samantha</style></author><author><style face="normal" font="default" size="100%">Dawn Ehde</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Scoping Review of Health and Wellness Interventions for People Aging with and into Physical Disability</style></title><secondary-title><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year></dates><publisher><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></publisher><pub-location><style face="normal" font="default" size="100%">Boston, MA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;u&gt;Introduction.&lt;/u&gt;&amp;nbsp; There is an urgent need to increase knowledge, services, and evidence-based health and wellness (HW) interventions for people aging with and into disability as traditional aging services are expanding to serve this subpopulation. People who are aging with or into physical disabilities have high prevalence of comorbid conditions and health risk factors and this subpopulation is projected to increase dramatically in the next 20 years.&amp;nbsp; A scoping review of the HW intervention literature was conducted in order to: (1) assess the adaptability of the interventions for people aging with a physical disability and (2) contrast the interventions with evidenced-based HW interventions in aging populations that are being implemented across the U.S. on a larger scale.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Methods.&lt;/u&gt; PubMed, CINAHL, and PsycINFO were searched for peer-reviewed articles about adults with spinal cord injury, multiple sclerosis, stroke, osteoarthritis, post-polio syndrome, and muscular dystrophy. The inclusion criteria for articles included:&amp;nbsp; (1) addressed promotion of HW in adults with physical disabilities; (2) focused on community-based behavioral or educational intervention that targeted HW.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Results&lt;/u&gt;.&amp;nbsp; Data were extracted from 82 articles meeting inclusion criteria. The most common HW interventions included exercise, self-management, counseling, and health education, which often paralleled interventions being deployed by aging agencies.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Conclusion&lt;/u&gt;.&amp;nbsp; There is support for adapting concepts and strategies from HW interventions from the fields of both aging and disability by applying standard adaptation models to create evidence-based HW interventions for the subpopulation of people aging with and into disability.&amp;nbsp;&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Thomas E. McNalley</style></author><author><style face="normal" font="default" size="100%">Yorkston, Kathryn M</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Anjali R. Truitt</style></author><author><style face="normal" font="default" size="100%">Baylor, Carolyn</style></author><author><style face="normal" font="default" size="100%">Katherine G. Schomer</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee M</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Scoping Review of Secondary Health Conditions fo People Aging with Post-Polio Syndrome</style></title><secondary-title><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year></dates><publisher><style face="normal" font="default" size="100%">American Public Health Association's (APHA) Annual Meeting</style></publisher><pub-location><style face="normal" font="default" size="100%">Boston, MA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;u&gt;Introduction.&lt;/u&gt;&amp;nbsp; Post-polio syndrome (PPS), occurring in approximately half of people who previous contracted polio, is characterized by increased weakness, pain and fatigue. Although this orphaned condition was nearly eradicated world-wide in the 20&lt;sup&gt;th&lt;/sup&gt; century, almost nothing is known about the trajectory of associated health conditions as people age or how these conditions can be distinguished from typical aging. &amp;nbsp;An environmental scan of the literature was conducted to establish a platform of shared knowledge to better understand the needs of this population. Specifically, this review examined the types, frequency, timing of onset, and severity of associated health conditions in persons aging with or into PPS.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Methods.&lt;/u&gt; PubMed, CINAHL, and PsycINFO were searched for data-based articles about adults with PPS using a list of 76 chronic conditions. Articles were included that explored prevalence / incidence, severity, frequency, duration, or life course of associated conditions.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Results&lt;/u&gt;.&amp;nbsp; Data were extracted from 57 articles. As expected, fatigue, pain, and muscle weakness were the most prevalent conditions.&amp;nbsp; In addition, a number of other conditions were reported: respiration problems, depression, sleep disturbance, injurious falls, bone or joint problems, cardiovascular health, diabetes, bladder function, and skin problems.&lt;/p&gt;
&lt;p&gt;&lt;u&gt;Conclusion&lt;/u&gt;.&amp;nbsp; A number of potentially treatable health conditions are common in people aging with PPS.&amp;nbsp; The lack of longitudinal studies limits our ability to draw conclusions about age and duration effects. Such information is needed to guide home and community based services or care coordination delivered through the network of programs sponsored by the aging agencies.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Bamer, Alyssa M</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author><author><style face="normal" font="default" size="100%">Salem, Rana</style></author><author><style face="normal" font="default" size="100%">Borson, Soo</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Symptom Profiles in Individuals Aging with Post-Polio Syndrome.</style></title><secondary-title><style face="normal" font="default" size="100%">J Am Geriatr Soc</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2013 Oct</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">61</style></volume><pages><style face="normal" font="default" size="100%">1813-1815</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><issue><style face="normal" font="default" size="100%">10</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author><author><style face="normal" font="default" size="100%">Borson, Soo</style></author><author><style face="normal" font="default" size="100%">Salem, Rana</style></author><author><style face="normal" font="default" size="100%">Johnson, Kurt L</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Aging with disabilities: Comparing symptoms and quality of life indicators of individuals aging with disabilities to U.S. general population norms.</style></title><secondary-title><style face="normal" font="default" size="100%">Journal of the American Geriatrics Society</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Special Issue: 2012 Annual Scientific Meeting Abstract Book</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><pub-location><style face="normal" font="default" size="100%">Seattle, WA</style></pub-location><volume><style face="normal" font="default" size="100%">60</style></volume><pages><style face="normal" font="default" size="100%">S185</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Background: Advances in medical care and rehabilitation have extended the lifespan of people with long-term physical disabilities. However, quantifying the excess burden of symptoms in persons aging with disabilities has been hindered by lack of common metrics across measures and clinical populations. The NIH-funded PROMIS initiative used modern psychometric methods to develop instruments that do use a common metric and provide US population norms for many important domains. The objective of the current study was to construct profiles of symptoms and QoL indicators in persons aging with a long-term disability and to compare them to US population norms. Methods: PROMIS short forms measuring 7 symptoms or QoL indicators (fatigue, pain interference with activities, physical and social function, depression, and sleep and wake disturbance) were completed by individuals with muscular dystrophy (264), multiple sclerosis (481), post-polio syndrome (445), and spinal cord injury (323) (total N=1513) participating in an ongoing longitudinal survey. Individuals aged 45-94 were included in this analysis. Scores for the overall sample, by diagnostic group and by age categories, were compared to the PROMIS US population norms. Results: Compared to the US general population, individuals aging with disabilities reported a higher symptom burden and poorer QoL on 6 of 7 measures (all p&amp;lt;0.0001). Only wake disturbance did not differ from the general population. Statistically significant differences ranged from a low of 2.4 points (sleep disturbance) to a high of 14.4 points (physical function) (T-score metric with a mean of 50 and sd of 10). Comparison to age group norms suggested that older (65+) individuals with disabilities experienced worse fatigue, more pain interference, higher depressive symptoms and lower social function than younger disabled groups.Differences between the disabled and general population groups in symptom burden and QoL widened with age; the oldest group, aged 75+, fared worst. Conclusions: Results clearly document that discrepancies in symptoms and QoL between the general population and people with disabilities increase with aging. Individuals with long-term disabilities constitute a subgroup of the aging population that may require specialized specialized models of health care to manage symptoms adequately, and optimize function and QoL.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">S4</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Salem, Rana</style></author><author><style face="normal" font="default" size="100%">Johnson, Kurt L</style></author><author><style face="normal" font="default" size="100%">Amtmann, Dagmar</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Body mass index and symptoms and quality of life indicators of individuals aging with disabilities</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><publisher><style face="normal" font="default" size="100%">American Public Health Association (APHA) Annual Meeting</style></publisher><pub-location><style face="normal" font="default" size="100%">San Francisco, CA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Introduction: People with disabilities (PWD) may find it more difficult to eat a healthy diet, control their weight, and be physically active. Health risks of obesity for PWD are well known, but the effects of obesity on secondary conditions and QoL has not been well established. Methods: PROMIS measures of fatigue, pain interference, physical and social function, depression, and sleep and wake disturbance were completed by individuals with muscular dystrophy (339), multiple sclerosis (579), post-polio syndrome (443), and spinal cord injury (488) (total N=1849) participating in an ongoing longitudinal survey of people aging with a disability. Self-reported weight and height were used to calculate BMI. T-scores by BMI categories were compared to the PROMIS US population norms. Results: The mean BMI of respondents was 26.4 kg/m2 with 5.3% classified as underweight (&amp;lt;18.5), 41.6% normal-weight (18.5&amp;lt;25), 29.7% overweight (25&amp;lt;30), and 23.4% obese (&amp;ge;30). Overweight and obese respondents tended to be older than normal weight individuals (p&amp;lt;0.05) and of male gender (p&amp;lt;0.0001). Compared to the US general population, individuals with disabilities reported a higher symptom burden and poorer QoL on all measures (all p&amp;lt;0.0001). Compared to the normal weight group obese individuals reported worse functioning on all QoL domains except depression (all p&amp;lt;0.05). In comparison to the overweight group the obese group also reported worse physical and social functioning, more fatigue and depression. Conclusion: Obesity in PWD is associated with a higher symptom burden and self-reported QoL. This should be considered when designing and deploying interventions to reduce obesity.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Goetz, Mark C</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Effects of pain and fatigue on physical functioning and depression in persons with muscular dystrophy.</style></title><secondary-title><style face="normal" font="default" size="100%">Disability and Health Journal</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Disabil Health J</style></alt-title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2012 Oct</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">5</style></volume><pages><style face="normal" font="default" size="100%">277-83</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Pain and fatigue are common symptoms experienced by persons with muscular dystrophy (MD). However, it is unclear from previous studies whether pain and fatigue have independent effects on physical functioning and depression, and whether age moderates the relationship of pain and fatigue with physical functioning and depression. OBJECTIVE: This cross-sectional study aimed to describe the relationship of pain and fatigue to physical functioning and depression in persons 20-89 years old with MD. METHOD: A convenience sample of 332 individuals with MD completed a questionnaire that included measures of physical functioning (PROMIS item bank items), depression (PHQ-9), pain intensity (0-10 NRS), and fatigue (0-10 NRS). RESULTS: Pain and fatigue were each independently associated with physical functioning and depression. Depressive symptoms were most severe among middle-aged participants (45-64 years old) relative to older and younger participants. Physical functioning had a negative relationship with chronological age. CONCLUSIONS: Symptoms of pain and fatigue are significantly and independently related to physical functioning and depression in persons with MD. Research is needed to determine if treatments that target both pain and fatigue in patients with MD have more beneficial effects than treatments that target only one of these symptoms.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">4</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/23021739?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Artherholt, Samantha</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Acosta Garcia, M J</style></author><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">inMotion: A phone-based randomized controlled trial to increase physical activity and improve mood</style></title><secondary-title><style face="normal" font="default" size="100%">International Journal of MS Care</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">http://ijmsc.org/doi/pdf/10.7224/1537-2073-14.S2.1</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">14</style></volume><pages><style face="normal" font="default" size="100%">25</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;Background: Major depressive disorder (&lt;/span&gt;MDD&lt;span style=&quot;line-height: 1.5;&quot;&gt;) is a common secondary condition in individuals with multiple sclerosis&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;(MS), with a lifetime prevalence estimated to be near 50%.&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;MDD is highly disabling in this population, contributing to&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;time lost from work, low quality of life, and poor health.&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;Commonly used treatments for &lt;/span&gt;MDD&lt;span style=&quot;line-height: 1.5;&quot;&gt; are not effective for&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;many with MS, and there are often major barriers to treatment. Numerous studies have shown that inactivity is a risk&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;factor for &lt;/span&gt;MDD&lt;span style=&quot;line-height: 1.5;&quot;&gt;, while increased activity is associated with&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;reduced risk of &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;MDD&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;. We have previously shown that physical activity has promise as a treatment for &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;MDD&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;, especially&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;for people with disabilities such as MS who may be inactive.&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;The current study extends this model to people aging with&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;MS and/or with limited mobility, including wheelchair users.&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;Objectives: The &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;inMotion&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt; Study is an ongoing randomized&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;controlled trial (&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;RCT&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;) for people aged &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;&amp;ge;45&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt; with depressive&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;symptoms (10 or higher on the &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;PHQ-9&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;). The objectives are&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;to increase physical activity and improve mood. Methods:&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;Participation is entirely by phone. Participants in the treatment condition receive seven motivational interviewing (MI)&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;sessions over 12 weeks in which they review exercise history,&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;goals, benefits, and barriers with a study counselor. Half of&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;the intervention group receives two booster calls during the&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;maintenance phase of the study (weeks 13&amp;ndash;24). Participants&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;in the control condition receive a single &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;psychoeducational&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;session at week 0. All participants are mailed an MS exercise DVD. Physical activity is recorded via &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;actigraphy&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt; at&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;baseline, 12 weeks, and 24 weeks. An independent examiner assesses outcomes in both groups at 12 and 24 weeks. &lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;Results: To date, 219 potential participants with MS have&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;been screened, with 52 enrolled (24%), 6 refused (3%), and&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;161 ineligible (74%). Ineligibility has been due primarily to&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;lack of depressive symptoms (N = 98, 61%). Conclusions:&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;A phone-based intervention to increase physical activity and&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;improve depression in people with MS is feasible, although&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;recruitment challenges have been significant. Results of&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;this RCT will determine the efficacy of this phone-based MI&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;approach to improving mood in people with MS, and will&amp;nbsp;&lt;/span&gt;&lt;span style=&quot;line-height: 1.5;&quot;&gt;explore potential mediators such as fatigue, pain, and general health.&lt;/span&gt;&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">S2</style></issue></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Campbell, Margaret L</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Heller, Tamar</style></author><author><style face="normal" font="default" size="100%">Spillman, Brenda</style></author><author><style face="normal" font="default" size="100%">Putnam, Michelle</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">New Investigations of Aging with Disability: Results and Implications for Data, Policy, and Practice</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><publisher><style face="normal" font="default" size="100%">Gerontological Society of America (GSA)</style></publisher><pub-location><style face="normal" font="default" size="100%">San Diego, CA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;This symposium will feature four presentations on aging &lt;em&gt;with&lt;/em&gt; and aging &lt;em&gt;into&lt;/em&gt; disability by distinguished scholars from gerontology and rehabilitation. The purpose of this symposium is to advance knowledge about the health and well-being of individuals aging with long-term disabilities acquired at different stages of the life course, and identify implications for program development and public policy. The symposium will also examine how best practices in health interventions in the fields of gerontology and disability can be used to inform each other to better meet the needs of the expanding population of individuals aging with disabilities, regardless of age of onset. &amp;nbsp;Gaps in data sources and evidence will also be discussed. Implications focus on how these findings inform federal, state, and local level policies and practices as well as international efforts to bridge the fields of aging and disability research.&lt;/p&gt;
&lt;p&gt;The first two presenters focus on documenting secondary/chronic health conditions experienced by individuals aging with long-term disabilities acquired earlier in life, and outlining the results of reviews of best practices for health promotion interventions to synthesize &amp;ldquo;what works&amp;rdquo; for middle-aged and older adults aging with physical and developmental disabilities. The third presenter utilizes data from The National Health and Aging Trends Study (NHATS) to examine implications of disability onset before late life for supportive services. The fourth presenter places these trends within a larger context of initiatives on healthy aging and highlights how they inform national and international work on bridging aging and disability research, policy, and practice.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">McMullen, Kara A</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Symptom Burden in Persons with Muscular Dystrophy (MD)</style></title></titles><dates><year><style  face="normal" font="default" size="100%">2012</style></year></dates><publisher><style face="normal" font="default" size="100%">American Public Health Association (APHA) Annual Meeting</style></publisher><pub-location><style face="normal" font="default" size="100%">San Francisco, CA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Introduction: Research suggests that pain, fatigue, imbalance, memory loss and vision loss may be a significant problem in persons with muscular dystrophy. The current study examines these symptoms, and their impact on patient functioning.&lt;/p&gt;
&lt;p&gt;Methods: 170 people with Myotonic Dystrophy Type 1 or Facioscapulohumeral Dystrophy participated in a study examining MD. Measures assessed incidence,, severity and course of five symptoms using a 0 to 10 Numerical Rating Scale. Social integration and psychological functioning were assessed using the Community Integration Questionnaire (CIQ) and the SF-36 mental component score. Descriptive and regression analyses examined the association between symptoms and functioning.&lt;/p&gt;
&lt;p&gt;Results: The most common symptoms reported were fatigue (90.6%), imbalance (82.4%) and pain (76.5%). The most severe symptom was imbalance (50.0% reported levels &amp;gt;6 on the NRS), followed by fatigue (46.5% &amp;gt;6). All symptoms were more likely to stay the same or get worse than improve since onset.When controlling for potential confounds, these symptoms explained 17% of the variance of the mental component score, 10% of home competency, 10% of social integration, and 9% of productive activity.&lt;/p&gt;
&lt;p&gt;Discussion: Pain, fatigue and imbalance are commonly reported symptoms in persons with MD. The severity and trajectory of these symptoms highlight a need for interventions to mitigate their impact on people with MD, and to improve productive activity and social integration. Further research is needed to examine the relationships among these symptoms and functioning and to guide clinical practices.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Matsuda, Patricia Noritake</style></author><author><style face="normal" font="default" size="100%">Shumway-Cook, Anne</style></author><author><style face="normal" font="default" size="100%">Ciol, Marcia A</style></author><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Kartin, Deborah A</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Understanding falls in multiple sclerosis: association of mobility status, concerns about falling, and accumulated impairments.</style></title><secondary-title><style face="normal" font="default" size="100%">Physical therapy</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Phys Ther</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Accidental Falls</style></keyword><keyword><style  face="normal" font="default" size="100%">Accidents, Home</style></keyword><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Chi-Square Distribution</style></keyword><keyword><style  face="normal" font="default" size="100%">Cross-Sectional Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Fear</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Mobility Limitation</style></keyword><keyword><style  face="normal" font="default" size="100%">Multiple Sclerosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Questionnaires</style></keyword><keyword><style  face="normal" font="default" size="100%">Risk Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Self-Help Devices</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2012 Mar</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">92</style></volume><pages><style face="normal" font="default" size="100%">407-15</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;BACKGROUND: Falls in people with multiple sclerosis (MS) are a serious health concern, and the percentage of people who restrict their activity because of concerns about falling (CAF) is not known. Mobility function and accumulated impairments are associated with fall risk in older adults but not in people with stroke and have not been studied in people with MS. OBJECTIVE: The purposes of this study were: (1) to estimate the percentage of people who have MS and report falling, CAF, and activity restrictions related to CAF; (2) to examine associations of these factors with fall status; and (3) to explore associations of fall status with mobility function and number of accumulated impairments. DESIGN: A cross-sectional survey was conducted. METHODS: A total of 575 community-dwelling people with MS provided information about sociodemographics, falls, CAF, activity restrictions related to CAF, mobility function, and accumulated impairments. Chi-square statistics were used to explore associations among these factors. RESULTS: In all participants, about 62% reported CAF and about 67% reported activity restrictions related to CAF. In participants who did not experience falls, 25.9% reported CAF and 27.7% reported activity restrictions related to CAF. Mobility function was associated with fall status; participants reporting moderate mobility restrictions reported the highest percentage of falls, and participants who were nonwalkers (ie, had severely limited self-mobility) reported the lowest percentage. Falls were associated with accumulated impairments; the participants who reported the highest percentage of 2 or more falls were those with 10 impairments. LIMITATIONS: This cross-sectional study relied on self-reported falls, mobility, and impairment status, which were not objectively verified. CONCLUSIONS: Both CAF and activity restrictions related to CAF were common in people with MS and were reported by people who experienced falls and those who did not. The association of fall status with mobility function did not appear to be linear. Fall risk increased with declining mobility function; however, at a certain threshold, further declines in mobility function were associated with fewer falls, possibly because of reduced fall risk exposure.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">3</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/22135709?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Jensen, Mark P</style></author><author><style face="normal" font="default" size="100%">Alschuler, Kevin N</style></author><author><style face="normal" font="default" size="100%">Smith, Amanda E</style></author><author><style face="normal" font="default" size="100%">Verrall, Aimee</style></author><author><style face="normal" font="default" size="100%">Goetz, Mark C</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Pain and fatigue in persons with postpolio syndrome: independent effects on functioning.</style></title><secondary-title><style face="normal" font="default" size="100%">Archives of Physical Medicine and Rehabilitation</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Arch Phys Med Rehabil</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Activities of Daily Living</style></keyword><keyword><style  face="normal" font="default" size="100%">Adult</style></keyword><keyword><style  face="normal" font="default" size="100%">Age Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged, 80 and over</style></keyword><keyword><style  face="normal" font="default" size="100%">Cross-Sectional Studies</style></keyword><keyword><style  face="normal" font="default" size="100%">Fatigue</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Pain</style></keyword><keyword><style  face="normal" font="default" size="100%">Postpoliomyelitis Syndrome</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2011</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2011 Nov</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">92</style></volume><pages><style face="normal" font="default" size="100%">1796-801</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;OBJECTIVES: To better understand the importance of pain and fatigue in relation to functioning, and to investigate the role that age plays in these relationships in individuals with postpolio syndrome (PPS). DESIGN: Cross-sectional survey. SETTING: Community-based survey. PARTICIPANTS: Convenience sample of 446 individuals with PPS. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Physical functioning (Patient Reported Outcomes Measurement Information System Physical Functioning item bank items), psychological functioning (Patient Health Questionnaire-9), pain intensity (0-10 numerical rating scale [NRS]), and fatigue (0-10 NRS). RESULTS: Pain and fatigue make independent contributions to the prediction of physical and psychological functioning. Depression was more severe in the middle-aged (&amp;le;64y) group than in the young-old (65-74y) or middle-old to oldest (&amp;ge;75y) groups, although the associations between pain and fatigue and both physical and psychological functioning are similar across all age cohorts. CONCLUSIONS: Complaints of pain or fatigue in patients with PPS who are older or elderly should not be attributed &amp;quot;merely&amp;quot; to the process of aging. The findings also support the need for clinical trials to develop and evaluate interventions that may help patients with PPS function better by treating pain and fatigue, as well as the negative effects that these symptoms can have on functioning.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">11</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/22032213?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Bombardier, Charles H</style></author><author><style face="normal" font="default" size="100%">Ehde, Dawn M</style></author><author><style face="normal" font="default" size="100%">Stoelb, Brenda</style></author><author><style face="normal" font="default" size="100%">Molton, Ivan R</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">The relationship of age-related factors to psychological functioning among people with disabilities.</style></title><secondary-title><style face="normal" font="default" size="100%">Physical medicine and rehabilitation clinics of North America</style></secondary-title><alt-title><style face="normal" font="default" size="100%">Phys Med Rehabil Clin N Am</style></alt-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Activities of Daily Living</style></keyword><keyword><style  face="normal" font="default" size="100%">Adaptation, Psychological</style></keyword><keyword><style  face="normal" font="default" size="100%">Age Factors</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Depressive Disorder</style></keyword><keyword><style  face="normal" font="default" size="100%">Disability Evaluation</style></keyword><keyword><style  face="normal" font="default" size="100%">Disabled Persons</style></keyword><keyword><style  face="normal" font="default" size="100%">Female</style></keyword><keyword><style  face="normal" font="default" size="100%">Geriatric Assessment</style></keyword><keyword><style  face="normal" font="default" size="100%">Humans</style></keyword><keyword><style  face="normal" font="default" size="100%">Interpersonal Relations</style></keyword><keyword><style  face="normal" font="default" size="100%">Male</style></keyword><keyword><style  face="normal" font="default" size="100%">Middle Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">Multiple Sclerosis</style></keyword><keyword><style  face="normal" font="default" size="100%">Psychology</style></keyword><keyword><style  face="normal" font="default" size="100%">Quality of Life</style></keyword><keyword><style  face="normal" font="default" size="100%">Self Concept</style></keyword><keyword><style  face="normal" font="default" size="100%">Sickness Impact Profile</style></keyword><keyword><style  face="normal" font="default" size="100%">Social Support</style></keyword><keyword><style  face="normal" font="default" size="100%">Spinal Cord Injuries</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2010</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2010 May</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">21</style></volume><pages><style face="normal" font="default" size="100%">281-97</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;The potential influence of age and aging on the psychological functioning of people with disabilities is surprisingly complex. In people with spinal cord injury or multiple sclerosis, depression is highly prevalent. The limited research in this area indicates that older age and greater time span since disability onset may be associated with less self-reported depressive symptoms. Posttraumatic growth (PTG) and benefit finding (BF) are also common in people with disabilities. Older age tends to be associated with less BF and PTG. Studies that use longitudinal designs and examine multiple age-related factors simultaneously are needed. Potential mediators of age-related effects, such as historical trends, life-cycle events, maturity, and declining health, also need to be examined. There are many interesting theoretic and empiric concepts from aging research that can inform future research on the psychological aspects of aging with disability.&lt;/p&gt;
</style></abstract><issue><style face="normal" font="default" size="100%">2</style></issue><custom1><style face="normal" font="default" size="100%">http://www.ncbi.nlm.nih.gov/pubmed/20494277?dopt=Abstract</style></custom1></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Johnson, K.</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Hertz, D.</style></author></secondary-authors><tertiary-authors><author><style face="normal" font="default" size="100%">Alschuler, K.</style></author><author><style face="normal" font="default" size="100%">Stobbe, G.</style></author><author><style face="normal" font="default" size="100%">Von Geldern, G.</style></author><author><style face="normal" font="default" size="100%">Kraft, G.</style></author><author><style face="normal" font="default" size="100%">Reynolds, P.</style></author><author><style face="normal" font="default" size="100%">Wundes, A.</style></author><author><style face="normal" font="default" size="100%">Alexander, K.</style></author><author><style face="normal" font="default" size="100%">Kalb, R.</style></author><author><style face="normal" font="default" size="100%">Unruh, K.</style></author><author><style face="normal" font="default" size="100%">Scott, J.</style></author></tertiary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Multiple Sclerosis Project ECHO:  Outreach to rural providers to provide innovative collaborative training using video conferencing</style></title><secondary-title><style face="normal" font="default" size="100%">Annual Meeting  of the National Association of Rehabilitation Research and Training Centers</style></secondary-title></titles><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>10</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Johnson, K.</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Stobbe, G.</style></author></secondary-authors><tertiary-authors><author><style face="normal" font="default" size="100%">Hertz, D.</style></author><author><style face="normal" font="default" size="100%">Alschuler, K.</style></author><author><style face="normal" font="default" size="100%">Alexander, K.</style></author><author><style face="normal" font="default" size="100%">Wundes, A.</style></author><author><style face="normal" font="default" size="100%">Kraft, G.</style></author><author><style face="normal" font="default" size="100%">Unruh, K.</style></author><author><style face="normal" font="default" size="100%">Kalb, R.</style></author><author><style face="normal" font="default" size="100%">Von Geldern, G.</style></author><author><style face="normal" font="default" size="100%">Reynolds, P.</style></author><author><style face="normal" font="default" size="100%">Scott, J.</style></author></tertiary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Multiple Sclerosis Project Echo:  Outreach to Rural Providers to provide Innovative Collaborative Training Using Video Conferencing</style></title><secondary-title><style face="normal" font="default" size="100%">Northwest Regional Telehealth Resource Center</style></secondary-title></titles><language><style face="normal" font="default" size="100%">eng</style></language></record></records></xml>